Gleason 9, Stage 4

I was diagnosed with Gleason 9, 5+4, that has spread to pelvic lymph nodes. I had radical prostatectomy with 23 nodes removed in September last year. I start ADT and radiation in February. Looking for personal experiences from anyone that has been where I’m going.

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Comments

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  • JoeMurphy
    11 months ago

    Sorry to hear that. 🤬I have Gleason 9 and has spread to lymph nodes and bones. I just finished 44 radiation’s and on lupron shots every 6 months. I am getting my next one in a week my cancer is castration resistant and I have to take Zytiga everyday.
    You can do this! It is life-changing but will keep you alive. Radiation was not too bad made me tired. I still work full-time doing maintenance work. If you have questions feel free to ask me. Keep up the fight Joe

  • sabaileytx author
    11 months ago

    Also, did you radiate your prostate or have prostate removed? I assume radiated because of the number of treatments. I’m scheduled for 37

  • JoeMurphy
    11 months ago

    I still have my prostate. The radiation was not bad gest made me tired. My hormonal therapy is going good. I cannot get erection😡 it is what keeping me alive. If I didn’t have it thy gave me 12 to18 months . Good luck on the radiation. Let me know how you are doing. And have a great day.

  • sabaileytx author
    11 months ago

    Thanks for your reply. My radiation oncologist is going to give me a one month shot First, to see if I’m ok with it and want to continue or not. My cancer was diagnosed and I had the da vinci robotics prostatectomy at MD Anderson in Houston and my primary dr is my Urology oncologist there. But my radiation will be done at Brooke Army Medical Center in San Antonio, where I live. Same brand machine, same procedure as MD Anderson, and my dr was trained at MD Anderson as well. He has been very informative and accepts the fact I may not want the hormone therapy. But from what I understand, it’s probably the most important treatment at this point, even more so than radiation. He told me most side effects of radiation come long after treatment has finished. But I don’t know what to expect then. I’ve had 25 surgeries to save my leg from an Army injury and the prostatectomy. 21 years with type 1 diabetes and on an insulin pump. I don’t know how my diabetes is going to react to all of this. It’s going to be a battle keeping my sugar down. The Air Force Just ordered a glucose monitor that I put on my shoulder into the skin. I just wave my meter over it and it shows my glucose level. No more finger sticks! It’s going to be a great thing to have going through this. Every diabetic reacts differently to different things. But I’m very insulin sensitive and my sugar climbs to 500 in about 60 min. if I don’t watch it. Im more worrisome about an event from my diabetes from all this. Thanks for replying. Get my PSA checked and see Urology follow up to get radiation/ADT started Thursday. If PSA is elevated at all, radiation will be salvage, if still .1, it will be adjuvant.

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