Having Surgery?

My story is a family one. In December of 2016, my brother had a PSA of 8.9. A biopsy showed a Gleason score of 9 and a prostatectomy found cancer has already spread to the lymph nodes and he is now Stage 4. He was treated with radiation and is now in hormone therapy.

In January of 2017, my GP informed me my PSA was 7.6 and sent me to a urologist. He did another PSA and it was 6. He suggested waiting and doing another PSA. I elected to have a 12 core biopsy. It was negative, but I requested that my cores be sent to Confirm MDX and that testing showed that I had cancer somewhere in my prostate. I then went to another urologist that had me do an MRI and a 18 core biopsy. One core came back with a Gleason score of six. I requested the core be tested for Genome and after five weeks the lab said my sample was too small to test. My doctor said we should continue active surveillance. I just completed another MRI last month and it showed a score of 3. Don’t fully understand what that means.

It has been extremely difficult to watch what is happening to my brother. Not only is his cancer advanced but he is both incontinent and impotent. The 30 biopsies has left me with some ED and the doctor suggested another set of biopsies. I am tired of the anxiety and told him I want it out. I tentatively have surgery scheduled for May 9th. I really don’t know if I made the right decision. I also have two cores that had HGPIN cells and one that had ASAP cells. My Doctor Googling tells me that is going to be cancer. Thinking I should get another opinion?

– Tnewman

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Comments

View Comments (13)
  • Deemusicman
    10 months ago

    Yes having surgery april 4th,,never had any surgey other than colonoscopy and biopsy.Im a faithful person and no matter what I pray and Hope for Gods will to come out ok.Reading the stories here helps hanks,.Dee

  • Tnewman author
    10 months ago

    Dee, are you doing Davinci? Keep us informed how it goes. I will be thinking about you. Wish you the best results!
    Tony

  • Deemusicman
    10 months ago

    Yes devinci,sorry not getting back been working long hrs ,hope things are doing good for you

  • JoeMurphy
    10 months ago

    It well you need be strong you have a chance 🍀😃

  • Deemusicman
    10 months ago

    Thanks Joe, wish you the best

  • carlb
    11 months ago

    I went through the same wait and see until I saw my uncle and my cousin both succumb to prostate cancer spread to the bone. I then decided to have the Prostate removed. It went great for about 6 months, then my PSA started climbing again. In the meantime I came down with breast cancer and had a mastectomy. No connection between the 2. I then started a regime of 39 radiation treatments for the prostate and pelvic region. I have just finished that and am watching the PSA levels. All I can do is pray it worked this time. If I had to do it over again I would have said to yank it out when first detected 6 years ago and I certainly recommend that..

  • Tnewman author
    10 months ago

    Carib, you have helped me feel better about taking it out. Active surveillance might be alright for some but I am so stressed out watching what is happening to my brother. I can’t do what he is doing. Thank you for your input. I wish you the best.
    Tony

  • JoeMurphy
    10 months ago

    I hope are doing well mine is my Bone and lymph nodes Don’t give up keep on the doctors

  • Deemusicman
    10 months ago

    Joe ,jopebyou are doing better ,yes Faith gives strentgh,God be with you and best of luck letcus know how things are going

  • Deemusicman
    10 months ago

    Thanks for your story wish you the best in the future ,and its comforting to onow you and many others have chose surgery.God bless

  • JoeMurphy
    11 months ago

    Sorry to hear what’s been happening . Keep up the faith . Have a great day

  • Tnewman author
    10 months ago

    Joe, thank you for the positive post. Hope you are doing well.
    Tony

  • JoeMurphy
    10 months ago

    Thank Tony I am well 7 months of treatment. Stay happy

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