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September 2018

I found out in Sept. of 2018 that I had prostate cancer. I was 61 and 4 months old. This is how it went down.

Visits to the doctors

My physician had been after me for years about a lesion on my neck to go get it looked at, so in Aug 2018 I did and saw a dermatologist and the lesion came back positive and had it removed. I went back in later and Dr. said he checked the tissue around it and got it all, I was relieved.

Went in for a follow up with my physician for yearly exam and Dr. said my PSA was elevated. I believe it was a 5 and he said I should go see the the urologist and they will retake the PSA and so I did (down the hall from the Dermatologist that I had seen). So got appointment, went in, they took PSA again and visited with urologist.

Results and big decisions

He checked out my prostate, which he said was enlarged, and asked a bunch of questions about how I felt and bowel movements and erections and sex and my piss stream and activities on and on. They got results and they were the same as physicians results. So he scheduled MRI, that was a week later. Went back in to see urologist and he said that results showed the enlarged prostate and enlarged lymph nodes. So the next step was biopsies and that was beginning of the next week and oh my that was a lot of FUN 😩 NOT. When the results came back it was a 3-3, Gleason scale of 6.

I chose to do wait and watch and had PSA again in January of 2019. Had elevated to 8, but something I wasn’t aware of is if you had intercourse within 36 hours it could elevate it. I had intercourse in less than 24 hrs before taking the PSA. So I’m going in this coming Monday (in about 2 days) and haven’t had intercourse since yesterday @ 10:30 AM.

So I guess we will see what the PSA comes back as the following Monday and go from there. My Urologist says that it’s always best to catch it early and everything I’ve read says the same thing. All the research that I have done is probably only a drop in a bucket. I’m interested in cyber knife, I’m not sure if it is an option with my insurance BCBS, but I’m not interested in removal/surgery, I know that for sure.

Power of community that has been there

I greatly appreciate your site and all of your members, I have been reading all the comments from the shadows and signed up here today. I’m a recovering alcoholic of 30 years, so I know what it means to have a sponsor and people around you to get through on a daily basis. Not to say that this is a prostate 12 step program, but that I have the mentality to understand the power of a community that has been there and done that, right or wrong, but learn from it. So I’m at the infant/Crawling stages of this Rotten Cancerous situation and I’m the rookie here, but I will absorb every bit of knowledge you throw my way.

I will say one thing though, I have seen a lot of comments everywhere to the effect, (USE IT OR LOSE IT) to this I say B.S. I have a very high sexual appetite and have used it since I was 15, and a lot. Not bragging, just a fact that I’m not sure how much it has to do with getting prostate cancer, maybe I’m wrong. I’m still using it.
Thank you for your time.
Vinny

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The ProstateCancer.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Vinny author
    3 months ago

    “I got my PSA back and it went down 👍
    Here are all the PSA results with dates.
    6-1-15 3.28
    7-31-18. 5.77
    8-23-18. 4.96
    12-6-18. 6.91
    3-18-19. 5.31
    I go back to see urologist Monday 3-25-19.

    I saw my urologist yesterday and like I said, my PSA went down to 5.31. I came to the conclusion after some research that having intercourse 24 hrs before PSA test had elevated my count, which I explained to my urologist before this PSA test last week. I also told him I started a ACV (apple cider vinegar ) regiment a month ago, don’t know if it has anything to do with it, but figured I’d tell him, 2tbls each morning 30 min before meals.
    Anyways, we decided another PSA in three months and another biopsie in September. Not sure on the biopsie again yet
    ( barbaric procedure ) but urologist said we could do it a hospital under sedative, that why I say not yet, I’m considering it, but I’ll see after the next PSA.
    Still would be interested in anyone’s input on cyber knife.
    Thanks for your time.

  • Richard Faust moderator
    3 months ago

    Hi Vinny. You mentioned having the original MRI, so maybe it is already in the plans, but wanted to suggest an MRI guided biopsy for the the next one. Without that guidance the biopsy can be like a shot in the dark. Our contributor Len likes to note how his Gleason 9 PCa was only caught in 8% of the 12 biopsy plugs and a millimeter one way or the other and the cancer could have been missed.

    Second, you mentioned the cyberknife, so thought you would be interested in this article from our editorial team which gives an overview of various radiation therapies for PCa, including cyberknife: https://prostatecancer.net/treatment/radiation-therapy/.

    Finally, it is great that you are looking to gather as much information as possible. It is important that you stay on top of this. Many in the community will tell you about the importance of early detection and treatment. You are still a young man and you do have cancer. This article from our editorial team takes a closer look at active surveillance: https://prostatecancer.net/treatment/active-surveillance/.

    This community will absolutely be there for you with information and support. Feel free to keep us posted on how things are going. Best, Richard (ProstateCancer.net Team)

  • ninaw moderator
    3 months ago

    Hi @Vinny, I know you’d shared some results in a separate story. I wanted to see if you’d like to post them here? That way people can see them right under this story. I appreciate your play by play of how it all happened, and your thoughts on why having a group can help. I’ve heard from a couple guys in the community who also went through AA, and they too have that sense of supporting others and being in it together. I’m sure this story will reach others who are looking for similar experiences! – Nina, ProstateCancer.net Team

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