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Decided on treatment

I posted three months ago that I was somewhat undecided about having treatment. I had been under active surveillance and the doctor wanted to do the third set of biopsies. I choose treatment and last Wednesday I had my prostate removed with the DaVinci robotic surgery. The two days after surgery were rough. The pain was extreme. Every day since then I am getting stronger and have very little discomfort. The catheter is a little hassle not bad. Today the doctor called with the pathology, my cancer had advanced and was a 4+3 and he said it was good that I removed it. The lymph nodes are clear.

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Comments

  • RailwayMan
    12 months ago

    “Watchful waiting” was a huge mistake for me, and an older friend. Our HMO stops PSA testing at age 70 … mine had been 2-3 slowly rising for years. His wife insisted he have a PSA after a decade …. his has spread to all parts of his body. I’m currently in radiation as surgery was ruled out, … and was using Lupron for two months until it’s side effects made us stop.
    If my bump had been removed 6-7 years ago I would most likely be cancer free today. And our friend would not be going through the death-by-hell he is experiencing.
    DO NOT WAIT ONCE YOU HAVE THE TUMOR “BUMP!!!!!!” Get it removed.
    Had I, the new doc says I most likely would NOT have aggressive prostrate cancer!

  • ninaw moderator
    12 months ago

    That is really tough to hear, @RailwayMan, that you would not have had aggressive prostate cancer. I’m so sorry to hear about your friend. I know there is great controversy about the age at which testing stops being recommended. I’m thinking of you both. – Nina, ProstateCancer.net Team

  • Tnewman author
    12 months ago

    RailwayMan, I am sorry for you. It seems like every day you see a news article saying that it is better to wait on treating prostate cancer and you will likely die of something else. I think those articles most often are written by people who don’t have prostate cancer. There is no doubt that is possible, but we that have prostate cancer want nothing more than to be cured. I am hopeful that my surgeon spared enough of the nerves to continue a normal life.
    I will not regret removing cancer from my body.

  • Deemusicman
    12 months ago

    Keep the faith ,I’m 6 and a half weeks in.Doin pretty good Thank God. Many blessings my friend oncevtge CATH is out it’s easier,the incontinence is something ya can get use to,some guys a few months some take longer,.But I am thankful for God’s grace,..Hang tough blessings my friend.

  • Tnewman author
    12 months ago

    Deemusicman, thank you for the words of encouragement. I am guessing I am lucky. I have not really experienced incontinence, I had trouble for the first four hours and after that, it has not been a problem. I am now using the small pads. Just in case. I did a lot of Kegels before the surgery and maybe that is paying off. I do experience some fatigue though and take a nap every day. I had lunch with my brother yesterday and he is stage four prostate cancer. He is totally incontinent. They are looking to install a magnetic valve in his urethra to control his urine flow. I feel bad telling him how well I am doing.
    Best to you !!!!!

  • ninaw moderator
    12 months ago

    Thank you for your words of encouragement to @tnewman, @deemusicman. It’s great to have you here. – Nina, ProstateCancer.net Team

  • Richard Faust moderator
    12 months ago

    Hi Tnewman. That is great news about the lymph nodes. It’s good to hear that you got the procedure before it could advance further. We have numerous resources on dealing with recovery issues when you are ready. Everyone here is pulling for you. Best, Richard (ProstateCancer.net Team)

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