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Symptoms & Treatment Side Effects

Incontinence and bladder issues

  • By ninaw Keymaster

    A place to discuss problems with incontinence and bladder function.

    Privacy: only your username and any profile picture you’ve added will be visible to others.

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  • By tmjm40

    I had robotic prostate surgery on 11/28. I am 69 years old and have never ever had a problem with incontinence. Now, I can not tell when I am urinating until I feel the warmth of the urine on the maximum shield and pad I wear. Is this common?

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    • By ninaw Keymaster

      Hi @tmjm40, it sounds like you’re pretty fresh out of surgery. We’ve heard from a lot of members having various kinds of incontinence following surgery, but I can’t speak to how many have this problem of not being warned by their body that they need to urinate. This article talks about some different kinds of incontinence and what they feel like: https://www.health.harvard.edu/bladder-and-bowel/types-of-urinary-incontinence. This one talks about some types of treatments: https://prostatecancer.net/living-coping/incontinence/. Do you feel comfortable bringing this up with your doctor, or requesting a specialist for physical rehab?

      Recovery can take a long time, and a lot of members have mentioned that exercises like Kegels and other training can help. Actually, we just had a comment on this article talking about a routine: https://prostatecancer.net/living/exercise-for-erections/. However, it’s a good idea to make sure you’re doing the right exercise for your particular situation! Let us know if you end up speaking with your doc and what they recommend. – Nina, ProstateCancer.net Team

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  • By Will Jones Moderator

    Hi @tmjm40, I had my surgery in April 2018 and I too was 69 at the time. My experience was that I leaked, which I couldn’t really feel when it was happening, but I was always able to find a bathroom before urinating freely. I think you’ll see steady improvement over the next couple of months so that you can rely mostly on a lightweight shield during the day and nothing at night. Just past nine months, I’m now at the point where I can go for periods of time with no protection at all, usually around the house when I’m not too active. You might want to read my last three articles on PC.net. Each of them deals with incontinence specifically, as does an earlier article, Depending on Depends. Will Jones ProstateCancer.net Advocate Moderator

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  • By fred

    I had 5 weeks of radiation and 2 boosters for a cancer in a lymph node near the rectum.Had severe diarrhea for over 2 months,lost 27 lbs unto anti diarriah pills prescribed. Doctors state the radiation spray caused like a severe sunburn near the rectum.anyone else experiencing this and any suggestions on to help heal this

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  • By Hammerdwn

    I was diagnosed with prostate cancer in 2011, gleasons 5+4, and had surgery. Cancer had escaped to the bladder and was positive for local lymphnodes. Radiation and Lupton followed. 3 years later, PSA rise and found positive for lymph nodes distal into my mid back and neck area. Continued on Lupton and then Xtandi. As I had been having significant bladder control issues I was placed into therapy to help control. While it lessened for a while and I continued my exercises, it became worse over time requiring 2-3 pads a day. I have had countless leakage accidents and was offered both a mechanical device and surgery for a valve. I tried the mechanical device but it was uncomfortable. I do not wish to have surgery for the valve. I have learned to live with it and carry pads, have them in my car and take a Lot when away from home. I still do the keegles. I have no pain nor problem with urinating. As this problem is just one of many associated with my disease, I chose to attend to the more major problems such as I now appear to be hormone resistant with PSAs doubling every 3 mos and now every month, last PSA at 8.5. I suppose the only good thing about the hormone resistance is that I don’t have the many and annoying hot flashes…and my testicles seem to be back to normal size. I still don’t have a libido, though the surgery was significant and not much nerve sparing so that does work anyway. I was 56 when diagnosed. Thus the bladder problems are less “an issue” for me than other problems, including now porous and aching bones and facing choices for new medications to replace the hormone therapy. It’s all relative I suppose.

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  • By Hammerdwn

    I was in a clinical trial for some time with Xtandi. It worked extremely well for me. It dropped and kept my PSA to 0. It had no negative side effects and ultimately I left the clinical trial as I moved many states away from the hospital. I was fine for a few years with only Lupton. Then my PSA began to climb to above 80. As well the cancer showed up in several bones and my liver and pancreas. I have now started a clinical trial ( PROSTAR) at Moffitt hospital in Tampa that requires me to take Zytega and and experimental drug as well as prednisone. In one month the pain in my bones has gone and my PSA is down to 10. The Xtandi was an excellent drug for me when the cancer had advanced to only my lymphnodes. It might still be effective for me but my oncologist here recommended this clinical trial. I do have some rather nasty side effects that I did not have with Xtandi. In fact while taking Xtandi I actually felt quite good and had some odd favorable side effects such as having heavier hair growth on my head and having wounds heal very rapidly. That may have been only for me, but they were welcomed side effects. David

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    • By ninaw Keymaster

      Hi @edwuardo, Hammerdwn gave this really detailed review – I wanted to make sure you got it. Let us know how you’re doing and if there’s anything else we can do to help! – Nina, ProstateCancer.net Team

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