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Viewing 20 topics - 1 through 20 (of 26 total)
It’s one of the biggest hang ups for men who have surgery how it will affect their ability to get an errection after treatment. Everyone is very different in how things react (or not) and what treatment or aids are available to try and counter the effects and how effective they are. For me in the UK after robotic prostectomy (non nerve sparing) my choices were pretty limited to the good old pump and a constriction ring and injections of Cavajet. The pump does have additional use for muscle exercise which replaces the normal process of errection during the night to maintain healthy tissue in the penis. Other affects of surgery mean an internal vasectomy and once thats done and the prostate are gone dry orgasms. One thing I found early on is that you don’t actually need to have an errection to have an orgasm. The mind needs to be retrained as when you look at something that under normal circumstances would create a reaction in the penis this no longer happens unless you are fortunate to have nerve sparing surgery where depending on how much is spared as to the ability for you to have a normal errection. This can also take time to come back and again everyone is different. Using the pump and ring is not great in my experience as it feels numb, has no direction or stiffness pass the ring and you are limited to 30 minutes use before needing to allow blood flow again. The rings used need to be pretty tight to be effective too and I ended up using two! The other thing is by loosing the prostate you also loose the main producer of lubrication. My experience of water based lubes on their own is not great. After battling with the pump for a while I tried the injections. One of the ingredients in Cavajet can also cause some discomfort plus other side effects but again everyone is different. For me it felt like it was going to explode and after starting on a low 5 mg dose gradually built up to 30 mg before I had sufficient effect to be useable. The down side for me is whilst it is on,y supposed to last for an hour or less for me it lasted for 3 1/2 hours! Not great bearing in mind how it felt and at 4 hours became a medical emergency! The first time I used it, it took 30 minutes for me to build up the courage to stick a needle in my penis! By the time I had sorted it and got back to the bedroom my partner was asleep! That was a long 3 1/2 hours! After using this for a while I spoke with my doc to see if viagra might help so I could maybe at least reduce the amount needed to inject. Without the nerves it wouldn’t work but is supposed to help with blood flow also so worth a try. To my amazement it worked on its own! It shouldn’t but it does and I am not complaining! Not sure to this day why as at 1 mm a year growth it is unlikely I have regrown my nerve endings. I have though always remained posative and never given up hope. I have tried to stimulate my mind to encourage the brain to keep active in this area. Keeping the penis active even with the pump also has the effect of preventing shrinkage which happens to all muscle if not used. Try every option, never give up and if all else fails an errection penis is not everything if you are still alive! For some the mental effect of this could well be a major issue to battle but not something I have ever allowed to consume me. Chris ProstateCancer.net moderatorDoes humor help you cope with your diagnosis? What are your favorite quips and one-liners? Did anything funny happy in the course of your diagnosis or treatment? Share it here!My father, Floyd Elvis Estep suffered from the same cancer that I have, Advanced Prostate Cancer with Extensive Bone Metastasis Stage 4, Dia. 2...he battled it bravely for 11 1/2 years...he was in severe bone pain and his mind was really falling off toward the end...he looked like a skeleton with skin wrapped around it at the end...he slipped away to be with The Lord in his own bed in his own home in January...he won his battle and went to be with The Lord Jesus Christ...he took to his bed in mid-October 2017 and never made it out...I think of him everyday, I still talk to him everyday in my battle with this terrible disease...he was so strong and brave!!!!Share your tips, questions and frustrations with hormone therapy. Please keep in mind our community rules.A place to talk about personal experiences with sex and intimacy. Remember - you're welcome to discuss products, but no sales or soliciting!A place to discuss problems with incontinence and bladder function. Privacy: only your username and any profile picture you’ve added will be visible to others.I am in my third week of radiation and have an alarming amount of gas. Is this normal?Do you have problems with memory, brain fog, or other cognitive side effects? Share in this forum! Let others know what these side effects are like for you in daily life, and any tips for dealing with them. Privacy: all forums are anonymous and only display your username and any profile picture you select.A forum to discuss anti-depressants for prostate cancer-related depression - commonly triggered by diagnosis and treatment side effects. What has been your experience with anti-depressants? Do you have any tips to share? Privacy: all forums are anonymous - only your username and any profile picture you've uploaded will be visible to others.A forum to discuss depression related to prostate cancer. Depression is not uncommon for those with prostate cancer and can be triggered by the diagnosis, by physical and sexual side effects, and by treatments such as ADT (hormone therapy). Privacy: all forums are anonymous and only your username and any profile picture you upload will be visible to others.Aggressive prostate cancer? #9 on the Gleason score. What? Where do we go from here? Yes we need a CT scan and a bone scan. I have to say this news isn’t comforting to me, especially since our son died 2 months ago and I’m still reeling from that. How do I go about helping my husband through this? Where do we go from here? PolarmanI am 61 with an elevating PSA. 2 years ago my PSA was 5.0, it continues to elevate to now 9.5. Here lies the problem. In that time period I have had 2 prostate biopsies. Both totally negative. Should I just be thankful it remains negative and relax, or is there something truly wrong. Just wondering what else to do. Thanks for all the help. DaveShare your tips for talking to people about prostate cancer! How do you tell your story to coworkers, acquaintances, friends and lovers?The passing of a friend, family member, or community member is incredibly difficult, but remembering can be a powerful tool. This is a place to share any memories of those who have passed from prostate cancer. Click here and scroll down to "Start a New Topic" to post a new memory.Starting conversations about end of life care can be very difficult. When is the right time to start that conversation? Who do we start the conversation with? What are the next steps after a conversation? Hearing about others experience with these talks can be helpful. Share your thoughts or ask a question below:Tis the season for talking about men's health, and prostate cancer in particular. Are you growing a stache? If you can't, are you doing something else to mark Movember? If you've got any pictures to share, email them to us at email@example.com. We'll share them at the end of the month!We often hear about guys committing to exercises and different eating habits. It can also get harder to be active and prepare meals with the side effects of treatment. What's it been like for you?What does awareness month mean for you? Do you advocate, celebrate, or carry on with life as usual?
Viewing 20 topics - 1 through 20 (of 26 total)