caret icon Back to all discussions

Reoccurrence

Question, I’m looking to see the timing anyone had for reoccurrence of prostate cancer?

I was diagnosed in 2018, had surgery to remove the prostate. 2.5 years later the cancer came back. Then had radiation treatment and hormone treatments. I’m turning 60 this year and want to see what others experienced for any reoccurrence the first time or second time.

Each psa brings a new level of anxiety.

  1. Chief. No recurrence. RALP in June of 2018.

    1. I was originally diagnosed in 2013 with a Gleason 9. Scans prior to surgery suggested it was contained. During surgery pathology confirmed no signs of spread. I was declared cancer free and my post-op PSA was 0.02. Some 2 years later my PSA began a slow rise. In 2018 it reached 0.13 and I opted for radiation and ADT. We are now in 2023 with no evidence of disease (NED). So I just keep my fingers crossed.


      Some 2 years after radiation I developed Stage ll non-Hodgkins Lymphoma (NHL)which I was told MAY have been related to cell damage from radiation -- It that true ??? Who knows ?? Radiation does make changes to your body.


      The good news ... the NHL was caught early and treated with 6 months of chemo and once again I am (NED). My suggestion is be aware of body changes and if you are feeling off in any way make an MD appointment. We have been through a lot and it just makes sense to me at least to - Enjoy life, move forward, take care of myself and do not ignore any developing health changes.


      My NHL symptoms were VERY subtle for about 4 weeks and I put off making an MD appointment. Fortunately some timely significant pain in my right side caused a change in plans. 😀 Dennis(ProstateCancer.net TEAM)


      1. Thanks for sharing. I’m not sure why but knowing others are going through the same things somehow helps me not feel so isolated.
        While I share with my wife and family , they have a hard time understanding how I feel both physically and emotionally.

      2. When you learn you have cancer it can be very isolating mentally and physically. I believe it is impossible to for anyone to understand the true impact this diagnosis can have on you.


        My daughter and i have grown closer over the years - Why? She was also diagnosed with a form of cancer. In short we get it ... In sharp contrast my son who has never experienced cancer personally tries but is totally different in his understanding. My wife of 57 years knew I had cancer 3x and was treated - but still could not understand the impact it has.


        We all here have walked a path before you and we are here to offer support -which I hope you will also do as you continue on your journey. Dennis(ProstateCancer.net TEAM)

    2. Diagnosed in Dec 2019 at yhe age of 52. Prostatectomy in late April of 2020. Everything was going fine until Jan 2022 when PSA started creeping up. I had a pelvic MRI just after Christmas which showed a suspicious area but was inconclusive. PSMA PET scan last week was also inconclusive. My urologist recommended we wait 3-6 months, while monitoring PSA and repeat scans to try to pinpoint area before we start treatments.


      1. Mike I know this is a terrifying time for you and wish you the best.
        During this 3-6 month period find as much information as possible about next steps. For me I went from undetectable to radiation very quickly when my psa started to rise and I to had something show on my mri. Looking back I wish I had more time to research options prior to starting a full court press.

    3. it took 6 years before my husband was diagnosed the 2nd time. They didn't give him an option they told him that he was going to die and put him on hormone therapy so far he's had 3 treatments and I'm still confused but I put it in God's hands becsuse I don't think the Dr's care if he dies or not

      Please read our rules before posting.