LCBB
I just completed 43 radiation treatments for my prostate cancer. I was given an injection of Lupron before the radiation treatments began and will receive 3 more, one every 6 months.
Additionally Dr. Is suggesting two years of abiraterone acetate accompanied with prednisone, but says it is optional. I am leaning towards not taking these and wondered if anyone here has had similar advice.
CommunityMember8515505 Member
I just finished proton therapy and have been on Lupron for 6 months and about abiraterone for about 4 months. The prednisone combats the side effects of the abiraterone. If you look the two up you can see the way they work differently. Lupron works on the prostate but the AB works more on tumors that are metastatic. I am assuming that is your case. There has been some new research that suggests the zytiga combined with the AB may work better.
After proton radiation I need to wait six weeks before any testing will show anything. It may just be a baseline and then more blood work later?
Regardless, I am in my 60’s and was pretty active before all the drugs and radiation. I am stage 4A, metastatic, high risk. However, I plan to see the Drs again next month and ask about dropping all the meds with monitoring until I get in my 70’s. Because right now I am a mess: no Labido, hot flashes, loss of muscle and strength, fatigue, dizziness, etc. It may be selfish but I don’t want to live like this right now.
We each have our own situations and one thing I learned is each person with prostate cancer has a different way to treat it. There is no blanket treatment.
I went to MD Anderson where at least they are cutting edge. You need to be sure you are dealing with an oncologist and oncologist radiologist. Not. I don’t even see the urologist any more.
Hope you can get something out of this. My mind still wanders from all the side effects. Lol
Big Red 57 Member
Good morning LCBB - Just met with my Medical Oncologist on Friday and they are starting me on abiraterone 250 mg - to be take 4 times a day along with prednisone as well as quarterly lupron injections. My radiation therapy will not start until late November and I am scheduled for 5 1/2 weeks of therapy. My initial diagnosis was Stage 4 with a Gleason score of 9. I am working with doctors at Northwestern. Cancer has spread to 3 lymph nodes - one is 0.6 cm and the other two are 0.3 cm. All three doctors (Urologist, Radiologist and Medical Oncologist) feel that they can cure me based on my diagnosis - so I am opting for an aggressive form of therapy. I guess your doctor stating it is optional is based on how advanced the cancer is - I can tell you I was shocked to see the cost of the abiraterone and am waiting to see what my insurance (BCBS) is going to pay, but on Good RX the list price was over $9,000.00 with a Good RX price of just under $300.00. Good luck on your journey.
Big Red 57 Member
Amhodge68 Member
LCBB Member
Hello Big Red 57, Thank you for your reply. I hope the best for you.
Big Red 57 Member
LCBB Member
Big Red 57 Member