kboulange's Status Updates

"So here we are in may of 2026. I had recurrence found last fall with rising PSA which went from .04 to .11 in a three month period. Had PET scan and they found a small tumor in localized lymph node. Started on Orgovyx for six weeks prior to 38 low dose radiation appts. which I completed on 4/5/2026. Am still on the ADT Ogovyx treatment which they wanted me to do for 18 months to 2yrs. Couldn't get any answers as to the length of time one should be on ADT so after researching it myself (like every other aspect of this disease and it's treatments) I have found that unless you have an aggressive case with metastasis beyond locally located ones that after six months the returns are not much . Going off ADT in July which will be seven months for me as the side effects are showing up in my life and are starting to my daily routines alot. Fatigue , No sex drive , hot flashes that interrupt your sleep making you tired and fatigued all day and probably muscle/bone loss to come. I found that the definitive tests for ADT were based on a 6 month regimen and while there was a little improvement for no recurrence at 12 months after that none backed by evidence. the people that have higher stages with more metastasis should be the patients taking ADT continually or on an extended therapy with it. Also recovery from ADT gets worse the longer you stay on it requiring considerably more time for your body to get back to normal. Anyway that's my take and will touch base later when I see how it goes. Keep up the good fight and stay positive at all costs!"

"Just got my first PSA test results since prostatectomy.....came out undetectable so cancer free for now . Will have PSA tests every 6 months "