Low PSA

By SCONE919

1 min read

Diagnosed with prostate cancer

In 2015 I had a CAT scan that showed I had prostate cancer. At the time my PSA was 2.7. So i opted for radiation treatment. As time went by my doctor sort of paid no attention to my PSA. It stayed at 1.7 or 1.9 and never went to 0.

17 years later

So know 17 years later i am have difficulty urinating and ED. So go to a new urologist. They have to do a TURP which made me urinate and get off of Tamuloson. But now I have an AXIUM PET SCAN A mrI SCAN AND IT SHOW THE CANCER IS BACK....OR SHOULD I SAY IT NEVER WENT AWAY BECAUSE THEY DID NOT GIVE ME ENOUGH RADIATION TO KILL IT ALL IN 2015. So now I have two biopsys, a pet scan, and a mri. So I go to Sloan Kittering and they do not know what is going on.

Is there metastesization?

One says cancer is moving to the seminal vessiles one says no.One show a spot with alot of cancer one says no. Gleason score of 6 PSA 1.9. Now i am going back to do an other PET scan this time the PSMA. So weird that this is what is happening and the Doctor at Sloan is perplexted. Nothing seems to be out of the Prostate but still worried about all of this. Also, I am going to ask them to send it out for genomic test. Anybody ever hear of this.

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Richard Faust Community Admin
Hi <inline-mention username="SCONE919" user-id="4818235"/>. Sorry you have been dealing with these conflicting reports and your concern is certainly understandable. I can tell you that right up until you mentioned it in the last paragraph I was already thinking that a PSMA PET scan could possibly clear all of this up. It is currently the gold standard in locating the exact location of recurrent prostate cancer and this article will provide additional information: <a href='https://prostatecancer.net/clinical/psma-imaging-scan' target='_blank'>https://prostatecancer.net/clinical/psma-imaging-scan</a>. I have little doubt that this is the doctors at Sloan Kettering are thinking along the same lines. Don't be afraid to ask them to lay out their plans and describe their thought processes. Wishing you the best and please feel free to keep us posted on how things are going. Richard (ProstateCancer.net Team)
Jim Early Moderator & Contributor
Scone, I'm a little confused with the timing. Your header says 17 years but it sounds like everything has happened in the last 7 years. Am I wrong? The PSMA is a very good idea! That Gleason score is from a biopsy and not the result of studying the entire prostate, so there could have been cancer cells with a higher Gleason around the biopsied area. The Gleason score is only as good as the material they are given to study and grade. As Richard said, a PSMA is a good idea and full understanding of what the doctors are thinking is an even better idea! Good luck and good health!
Dennis E. Golden Moderator & Contributor
 A few thoughts. My initial Gleason score of 9 prior to surgery was confirmed after surgery by a pathologist examining the entire gland . By all accounts and based on tissue sampling and pathology reports my cancer was declared contained. Through out the entire sequence from initial diagnosis to surgery my PSA score never went above 3.1. So at least in my case it is possible to have an aggressive cancer and a low PSA score. I perhaps like you had a few undetected cancer cells escape the gland. This break out did result in my cancer returning in 2018. At that point I was treated with radiation and LUPRON. My treatment was based on the assumption that any remaining cancer was most likely confined to the prostate bed --- Today all is good so far. The PSMA scan was not available when I underwent radiation treatment . The good news is the scan is available along with the potential of finding early developing hidden cells. Once located they potentially could be targeted with some form of external beam radiation. Do keep us posted and good luck. Dennis(Prostate-Cancer.net TEAM)