My Journey with Prostate cancer

By Perlongotom

1 min read

Hi. My name is Tom. I am 53 years old and here is my story. In April or 2021 I was diagnosed after a biopsy of prostate cancer. It was a high grade so, I had to have a prostatectomy. The prostate was removed as well as a rather large cancerous tumor. Two weeks after that surgery, I had to have drains surgically implanted to drain fluid from my lymph nodes.

How long does the ED last after the prostate is removed? I can't imagine not ever having sex again. This is very frustrating and heart breaking for both my and my wife. Any suggestions are welcome.

Thanks!

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SamuelTaylorMember
We hear you, <inline-mention username="Staylor" user-id="4262447"/>. It can be an identity shift to experience this sort of loss, for sure. Please feel free to continue asking questions within the community, I know that other's resonate with you. -Samuel, Team Member
StaylorMember
Thanks Samuel ~ yes, I'm back into that process now, but aside from injections and implants, it might just be a waiting process. I was mostly interested in the psychological effect of this on other guys. I live alone and haven't had a sex partner anyway for a while, but the loss was an unexpected identity surprise.
SamuelTaylorMember
We appreciate you sharing your grieving process, <inline-mention username="Staylor" user-id="4262447"/>. Other's certainly have shared this experience of losing some of their "manhood" however there are also many examples of therapies and procedures to regain some of the functioning that has been lost from treatment. Have you looked into any physical therapies for addressing the complications? -Samuel, Team Member
StaylorMember
Thanks guys, this helps. I had surgery in October 2020 by someone who was considered to be the best in my state, but he left some stuff, and my oncologist immediately put me on Lupron which sent my PSA to 0.061. The surgery, I'm guessing, did some nerve and vessel damage, along with seven weeks of radiation, that has estranged me from my friend, my penis. Aside from the frustration, relative unknowns, and varying answers, I am grieving the loss of my buddy, and the shrinking of his companions. I considered gathering my friends, who have all heard way too much about my guys, and having a commemorative service that would help in my grieving. As you may have noticed, my best way of dealing with this is humor, but I really want my "manhood" back. Do any of you feel a need for a grieving process for your loss? I think that would help me to know you may share my grief.
Dennis E. GoldenMember
danny 115 ... Just an FYI .... Peyronie’s disease ( a curve in the penis) can be the result of scar tissue build up in the penis that results in bends, curves, and a loss of length and girth.The condition can be the result of an injury or after surgery. Based on conversations with men in our support group and urologists, the BEST course is to find a expert who is VERY skilled at treating that specific condition. Not all curves are indications of the disease so ... best to do some investigating. ... Dennis(ProstateCancer.net TEAM)