Hello all. I started testing PSA/PHI at 45 (family history) and was diagnosed with prostate cancer in 2020 (age 52). The diagnosis occurred 3 months after my father passing from lung and prostate cancer that had metasticized.
I'm currently gleason 3+3. Had 2 biopsies and then last year a saturation biopsy (24 cores) and all have confirmed the same results. This year I had a PET scan as well as another MRI to confirm additional questions. The PET scan showed no signs of cancer spread and the MRI confirmed the size of prostate and spacing around prostate should i choose surgery.
Genetically, the cancer has twice been tested as a less aggressive variety.
My original Urologist, head of Urology in Glenview, IL highly recommeded Active Surveillance. I've been on that path for five'sh years. I got second and third opionions from head of Urology at U of Chicago and a family connection who is head of urology in Orlando. One said prostatecamy and one said active surveillance. Both noting I am generally young
I continue to churn on treatment. Really slow urination, like really, really slow. Have tried meds. I'm mentally tired of thinking about this and stress about having cancer lingering in me - even though I know the tumor size and genetics are favorable for continued surveillance. No one has recommeded radiation although I have not favored that path since it was unsuccessful for my Dad. My uncle had prostetectemy around age 68 and has done great - he is now 83.
So. Am I crazy for wanting to pursue robotice surgery at this point? My rationale is to do it while I'm in good health, work hard ahead of surgery as well as in recovery to (hopefully) re-establish erectile and urinary control, and hopefully put the cancer behind me. My current urologist supports this (is good with surgery or AS as long as I keep testing).
My wife and I have discussed this off and on for 5 years and she supports whichever path I favor and has committed to being ok with the outcome of either path. We have two young kids (7/9) and I want to be around for a while!
I really have no one to chat with about this outside of my wife and would love to hear how others have managed this. My biggest concern with AS is that over time (5-10-15 years), cancer will migrate outside the prostate them I'm dealing with a different issue.