Biopsy results - doesn't look good to me................
Just heard from my Urologist and I am sharing the results of the biopsy - they are ordering a PET scan as soon as possible and it appears that the cancer may have spread to other parts of my body. To say I am freaking out at this point would be an understatement and I am looking for help, suggestions, support on anyone that has gone down the road I am about to travel............
A. Prostate, right base, needle core biopsy:
Prostatic adenocarcinoma, Gleason score 4+5=9 (Grade group 5), involving 2 of 2 cores (90%, 95%)
Perineural invasion present.
B. Prostate, right mid, needle core biopsy:
Prostatic adenocarcinoma, Gleason score 4+5=9 (Grade group 5), involving 2 of 2 cores (95%, 100%)
C. Prostate, right apex, needle core biopsy:
Prostatic adenocarcinoma, Gleason score 4+3=7 (Grade group 3, with 90% Gleason 4 tumor), involving 2 of 2 cores (10%, 60%)
D. Prostate, left base, needle core biopsy:
Perineural focus of prostatic adenocarcinoma (<5%)
E. Prostate, left mid, needle core biopsy:
Prostatic adenocarcinoma, Gleason score 4+5=9 (Grade group 5), involving 1 of 2 cores (95%)
Perineural invasion present.
F. Prostate, left apex, needle core biopsy:
Prostatic adenocarcinoma, Gleason score 4+3=7 (Grade group 3, with 90% Gleason 4 tumor), involving 1 core (90%)
Perineural invasion present.
G. Prostate, target 1, needle core biopsy:
Prostatic adenocarcinoma, Gleason score 4+5=9 (Grade group 5), involving 3 of 3 cores (95%, 95%, 100%)
Perineural invasion present.
Foci suggestive of extraprostatic extension.
H. Prostate, target 2, needle core biopsy:
Prostatic adenocarcinoma, Gleason score 4+4=8 (Grade group 4), involving 2 of 2 cores (80%, 90%)
Perineural invasion present.
I. Prostate, target 3, needle core biopsy:
Prostatic adenocarcinoma, Gleason score 4+5=9 (Grade group 5), involving 2 of 2 cores (80%, 95%)
Perineural invasion present.
Hi, I'm new to this forum and I'm right there with you. It's difficult hearing you have PC and then to hear it may have spread is a punch in the gut to say the least. All I can say is don't freak out until you have confirmation. There are lots of options available to you, it's not the end of the world until it is. Have hope and take it one day at a time.
My personal story is just like yours, diagnosed with PC, was given hormone therapy which made me severely depressed and now my cancer has spread to my bones. I'm on treatment but I've been given 2 to 5 years.
Thankfully this is usually not the case for everyone and I'm hoping it's not for you. Keep posting if you can, the support here has helped me a lot and I hope it will help get you thru the tough times to come. Best wishes. JThanks for the reply Jy O - I wish you only the best in your journey and that there are new developments that will help fight the cancer diagnosis you and I face.
Wishing you the best, Big Red 57.
First, don’t rule out cure. That can still be the focus right now if it hasn’t spread too far.
Go here...
https://www.prostatecancerfree.org/compare-prostate-cancer-treatments/
There are three graphs that show probabilities of long term remission. I think you will be in the high risk graph (high risk of recurrence). They should be viewed on a laptop or printed on paper. They don’t look good on phone.
Study and get familiar with the facts and treatments and efficacy of the diagnostic tools. Don’t rely on doctor supplied facts alone.
Learning will make your anxiety go down. Alot of anxiety is due to not knowing enough.
For sleep, look into melatonin (which has anti cancer properties), and i use pot gummies. Also St. johns wort for nerves.
These studies are based on PSA being the most sensitive test for prostate cancer. While PSA is might be more closely correlated to cancer presence after treatment than it is before treatment, I'm very cautious about using it as a marker.
An acceleration in increase of PSA is the usual red flag, but that increase can be caused by a number of medical issues.
Guy B. Meredith, cancer survivor.Hi Guy,
Doctors rarely test PSA. Just once in awhile. Maybe years apart. What is the probability that on the random day they test, that you have a prostate infection at that moment?
I have had a bad prostate since my thirties. Had prostatitis a good number of times. Never did my PSA spike.
Over all of these years, everytime a doc ran a standard blood panel on me, I had him add a PSA to it. I plotted my PSA over the years. I got to know my normal range of PSA.
The day I received a 2.2, i thought something was wrong. I was correct. It was 2.6 a couple months later. I had cancer even though the uros kept telling me I was fine.
I had 2 MRIs and neither saw any cancer. I had the DNA urine test that said I was fine.
This went on for a year until i asked for the biopsy which showed cancer.
IMO nothing is as accurate as PSA when you plot it in dynamic time. You see your normal range when healthy. You see when it escapes that range. You see the exponential velocity of PSA trajectory as it moves upward.
