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The Journey Continues: Life After Prostate Cancer

People rarely realize the long-term impact of prostate cancer until it happens to them. Results from our 2019 In America survey revealed how prostate cancer and its side effects can have a lasting impact on quality of life and mental health, months and years after treatment is over.

How did you choose your treatment?

The top treatment decision factors were:

  • Efficacy (38%)
  • Potential side effects (28%)
  • Recommendations from a friend or family member (20%)

In addition to the standard treatments, people also incorporated alternative and/or adjunct therapies such as vitamins and supplements, erectile dysfunction drugs, and exercise into treatment. 62% reported feeling their prostate cancer was controlled on their current treatment plan.

Respondents used surgery (57%), radiation (51%), hormone therapy (44%), active surveillance (39%) and chemotherapy (11%)

Treatment side effects persist

Treatment can take a heavy toll, both physically and emotionally. Even when the worst of treatment is over, side effects may persist. Many of the side effects people reported are discussed daily in the community, especially sexual and urinary side effects and fatigue.

Respondents reported erectile dysfunction (55%), urinating more frequently (40%), fatigue (39%), sudden urge to urinate (34%)

Changes in your sex life

Some of the most difficult side effects to confront are the ones that change your sexual health, and 84% of men said their prostate cancer affected their sexual health and intimacy.

From erectile dysfunction to leaking to libido, prostate cancer can make it difficult to stay confident and sexually active. It can also be stressful to figure out how to communicate with partners around symptoms and any lack of desire.

Sex life satisfaction reported as: not at all (65%), a little bit (10%), somewhat (15%), quite a bit (6%), very much (4%)

Will I regret my treatment choice?

Treatment regret can wreak havoc on mental health. While more than half said they do not experience treatment regret, those who do feel regret often express their frustrations in the community.

The biggest regrets around prostate cancer treatment included general side effects, erectile dysfunction, incontinence, impact on sex life, and having chosen radiation. Regrets also surfaced from being uninformed about side effects during the decision-making process.

After treatment, men felt no regret (67%), neutral (20%), regret (13%) about their treatment choice.

Self-esteem and confidence take a hit

Given the nature of prostate cancer side effects, it’s no surprise that self-esteem and confidence can take a hit. 48% of respondents’ self-esteem and confidence stayed the same, while 40% of respondents experienced a negative impact on their self-esteem. Those who felt the negative impact also expressed worrying about the future, experiencing depression, and not feeling like a “real man” anymore.

Self-esteem/confidence %: much more negative (9), more negative (31), same (48), more positive (8), much more positive (4)

The power of hope and acceptance

Through the darkest times, many of our most dedicated community members remind us that there’s hope. Accepting a diagnosis looks different for each person, and it can be a powerful step to moving forward.

Despite the emotional and physical challenges, 71% accepted their diagnosis and 85% have not lost hope in the fight.

Prostate cancer's lasting effect

Prostate cancer doesn’t end with treatment. In many ways, it only just begins. The longer men live with the effects of prostate cancer, the harder it can be to cope with side effects, life changes, and find support.

Those who received their diagnosis in the past 2 years were less likely to regret their treatment decision and more likely to seek out support from family, friends, or other resources. In contrast, those who were diagnosed more than 5 years ago were more likely to regret their treatment choice and less likely to receive support or use other resources for help.

The side effects of prostate cancer can far outlast the cancer itself. That’s why it’s important to prioritize your own care continuously no matter where you are in your journey.

How does your treatment journey compare? Tell your story.

The Prostate Cancer In America 2019 survey was conducted online from September 2018 through January of 2019. Of the 1,162 people who completed the survey, 1,162 were people who have been diagnosed with prostate cancer.

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