There are a variety of different support groups and organizations dedicated to helping individuals with prostate cancer and their family or caregivers. These may assist you in finding more information, other helpful supportive services, and emotional support. Some of these outlets include:
Prostate cancer-specific organizations
UsTOO International
Aims to empower men diagnosed with prostate cancer and their loved ones with educational and support services.
https://www.ustoo.org/
ZERO -- The End of Prostate Cancer
Focus includes research, support for men and families, and advocacy, with the goal of curing prostate cancer for good.
https://zerocancer.org
Prostate Cancer Foundation
Large funder of prostate cancer research in prevention, detection and treatment with the goal of a cure. Also provide information for patients.
https://www.pcf.org
PHEN
Aims to eliminate the African American prostate cancer disparity. Also support all survivors through resources and activism.
http://prostatehealthed.org/
Movember
International charity focusing on three major men’s health issues: prostate cancer, testicular cancer, and mental health/suicide prevention.
https://us.movember.com/
Prostate Cancer UK
Supports prostate cancer research and helps men find treatments, screening options, and support.
https://prostatecanceruk.org/
Prostate Cancer Canada
Supports improving prevention, detection and treatment of prostate cancer.
http://www.prostatecancer.ca/
Support during treatment
Triage Cancer
Education on the practical and legal issues that affect cancer patients and their caregivers, through events, materials, and resources.
https://triagecancer.org/resources
Travel and Housing Assistance
American Cancer Society: Hope Lodge
Free, temporary housing facilities for individuals (and their families) during cancer treatment.
https://www.cancer.org/treatment/support-programs-and-services/patient-lodging/hope-lodge.html
1-800-227-2345
National Association of Hospital Hospitality Houses
Provides lodging and other support services to individuals (and their families) during a medical emergency.
http://www.nahhh.org/
1-800-542-9730
Air Care Alliance
Volunteers who provide free flights for individuals needed to travel for treatment.
http://www.aircareall.org/
1-800-260-9707
Corporate Angel Network
Free air transportation for individuals with cancer who need to travel for treatment. Utilizes empty seats on corporate jets.
http://www.corpangelnetwork.org/home
1-866-328-1313
National Patient Travel Helpline
Helps individuals find charitable medical transportation in the United States.
http://www.patienttravel.org/
1-800-296-1217
Financial and insurance support
Cancer Finances
A toolkit created by The Samfund and Triage Cancer to help make sound financial decisions before, during, and after cancer treatment.
https://cancerfinances.org/
Cancer Financial Assistance Coalition (CFAC)
Helping individuals with cancer manage their financial burdens.
http://www.cancerfac.org
CancerCare
Provides free professional help, including counseling, education, and direct financial assistance.
http://cancercare.org
1-800-813-4673
CancerCare Co-Payment Assistance Foundation
Aids individuals who cannot afford their insurance co-payments. Also has a specific fund for individuals with prostate cancer.
http://www.cancercarecopay.org
1-866-552-6729
HRSA Consolidated Health Centers
Offers primary and preventative health care to medically underserved communities. Services are provided regardless of an individual’s ability to pay. Federally funded program. Affordable health care plans are also available through this program (called Hill-Burton Free and Reduced Cost Health Care).
http://findahealthcenter.hrsa.gov
Health care coverage line: 1-800-638-0742 (Maryland residents call 1-800-492-0359)
Johnson & Johnson Patient Assist Foundation
Assists patients who are financial struggling and helps with prescription coverage.
http://www.jjpaf.org
Medicare/Medicaid
Federally funded programs designed to assist individuals over the age of 65 or with disabilities as well as individuals who need financial assistance.
https://www.medicare.gov/
https://www.medicaid.gov/index.html
1-800-633-4227/1-877-267-2323
Partnership for Prescription Assistance
Helps individuals without insurance coverage access medications or clinics for little to no cost.
https://www.pparx.org/
1-888-477-2669
Patient Access Network Foundation
Provides financial assistance for more than 50 conditions, including prostate cancer. Also provides travel assistance for men battling advanced prostate cancer.
https://panfoundation.org/index.php/en/
1-866-316-PANF (1-866-316-7263)
Patient Advocate Foundation Co-Pay Relief Program (CPR)
Provides direct financial assistance to individuals who qualify. Assists with prescription drug and treatment-related co-payments.
https://www.copays.org/
1-866-512-3861
Legal aid
Cancer Legal Resource Center
Works jointly with the Disability Rights Legal Center and Loyola Law School to provide information and resources on cancer-related legal issues for individuals or families affected by cancer.
http://www.cancerlegalresources.org/
1-866-843-2572
Disability Judges
Monthly updates about wait times, judges, and state track records regarding appeals. Information sourced from the Social Security Administration and the Office of Disability Adjudication and Review.
https://disabilityjudges.com/state
This is not an exhaustive list of all potential prostate cancer support groups and organizations. For more locally-based groups, as well as local in-person support groups, contact your doctor or healthcare team, or the social worker at your cancer center.