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Resources for Help

There are a variety of different support groups and organizations dedicated to helping individuals with prostate cancer and their family or caregivers. These may assist you in finding more information, other helpful supportive services, and emotional support. Some of these outlets include:

Prostate cancer-specific organizations

UsTOO International

Aims to empower men diagnosed with prostate cancer and their loved ones with educational and support services.
https://www.ustoo.org/

ZERO — The End of Prostate Cancer

Focus includes research, support for men and families, and advocacy, with the goal of curing prostate cancer for good.
https://zerocancer.org

Prostate Cancer Foundation

Large funder of prostate cancer research in prevention, detection and treatment with the goal of a cure. Also provide information for patients.
https://www.pcf.org

PHEN

Aims to eliminate the African American prostate cancer disparity. Also support all survivors through resources and activism.
http://prostatehealthed.org/

Movember

International charity focusing on three major men’s health issues: prostate cancer, testicular cancer, and mental health/suicide prevention.
https://us.movember.com/

Prostate Cancer UK

Supports prostate cancer research and helps men find treatments, screening options, and support.
https://prostatecanceruk.org/

Prostate Cancer Canada

Supports improving prevention, detection and treatment of prostate cancer.
http://www.prostatecancer.ca/

Support during treatment

Triage Cancer

Education on the practical and legal issues that affect cancer patients and their caregivers, through events, materials, and resources.
https://triagecancer.org/resources

Travel and Housing Assistance

American Cancer Society: Hope Lodge
Free, temporary housing facilities for individuals (and their families) during cancer treatment.
https://www.cancer.org/treatment/support-programs-and-services/patient-lodging/hope-lodge.html
1-800-227-2345

National Association of Hospital Hospitality Houses

Provides lodging and other support services to individuals (and their families) during a medical emergency.
http://www.nahhh.org/
1-800-542-9730

Air Care Alliance

Volunteers who provide free flights for individuals needed to travel for treatment.
http://www.aircareall.org/
1-800-260-9707

Corporate Angel Network

Free air transportation for individuals with cancer who need to travel for treatment. Utilizes empty seats on corporate jets.
http://www.corpangelnetwork.org/home
1-866-328-1313

National Patient Travel Helpline

Helps individuals find charitable medical transportation in the United States.
http://www.patienttravel.org/
1-800-296-1217

Financial and insurance support

Cancer Finances

A toolkit created by The Samfund and Triage Cancer to help make sound financial decisions before, during, and after cancer treatment.
https://cancerfinances.org/

Cancer Financial Assistance Coalition (CFAC)

Helping individuals with cancer manage their financial burdens.
http://www.cancerfac.org

CancerCare

Provides free professional help, including counseling, education, and direct financial assistance.
http://cancercare.org
1-800-813-4673

CancerCare Co-Payment Assistance Foundation

Aids individuals who cannot afford their insurance co-payments. Also has a specific fund for individuals with prostate cancer.
http://www.cancercarecopay.org
1-866-552-6729

HRSA Consolidated Health Centers

Offers primary and preventative health care to medically underserved communities. Services are provided regardless of an individual’s ability to pay. Federally funded program. Affordable health care plans are also available through this program (called Hill-Burton Free and Reduced Cost Health Care).
http://findahealthcenter.hrsa.gov
Health care coverage line: 1-800-638-0742 (Maryland residents call 1-800-492-0359)

Johnson & Johnson Patient Assist Foundation

Assists patients who are financial struggling and helps with prescription coverage.
http://www.jjpaf.org

Medicare/Medicaid

Federally funded programs designed to assist individuals over the age of 65 or with disabilities as well as individuals who need financial assistance.
https://www.medicare.gov/
https://www.medicaid.gov/index.html
1-800-633-4227/1-877-267-2323

Partnership for Prescription Assistance

Helps individuals without insurance coverage access medications or clinics for little to no cost.
https://www.pparx.org/
1-888-477-2669

Patient Access Network Foundation

Provides financial assistance for more than 50 conditions, including prostate cancer. Also provides travel assistance for men battling advanced prostate cancer.
https://panfoundation.org/index.php/en/
1-866-316-PANF (1-866-316-7263)

Patient Advocate Foundation Co-Pay Relief Program (CPR)

Provides direct financial assistance to individuals who qualify. Assists with prescription drug and treatment-related co-payments.
https://www.copays.org/
1-866-512-3861

Legal aid

Cancer Legal Resource Center

Works jointly with the Disability Rights Legal Center and Loyola Law School to provide information and resources on cancer-related legal issues for individuals or families affected by cancer.
http://www.cancerlegalresources.org/
1-866-843-2572

Disability Judges

Monthly updates about wait times, judges, and state track records regarding appeals. Information sourced from the Social Security Administration and the Office of Disability Adjudication and Review.
https://disabilityjudges.com/state

This is not an exhaustive list of all potential prostate cancer support groups and organizations. For more locally-based groups, as well as local in-person support groups, contact your doctor or healthcare team, or the social worker at your cancer center.

Written by: Casey Hribar | Last reviewed: October 2017