Day of Diagnosis
On June 10 2025, I walked into my urologist office not sure what to expect after having a biopsy about a week before this appointment. She had told me after MRI , I think she said it was a 5 , not too sure , that i needed a biopsy to look into the matter closer.
My PSA test was 10.4 at this point.
So when see came into the room, she sat down and said you have cancer.
I had no reaction, just stared at her and no words came out of my mouth.
I didn’t know how to feel at that point.
She started explaining some treatments and lots of info about what to do next. I didn’t say much , just listened to her . The word cancer stopped me from really listening to what she was saying. I walked out of the office, got in my truck and sat there for a few minutes to think how I was going to tell my wife. So I got home, looked at her for a few seconds and just said it. I felt kind of strange I don’t know how to describe it. It was surreal for some time. It took me a few days to realize the truth . Now I’m just getting to know more about PC watching videos on YouTube a lot .
Hi
. Your reaction of shock and numbness at hearing about the cancer is more than understandable and you certainly are not the first to speak of it here. As you learn more about your specific diagnosis and seek to find out about options please feel free to come here with questions. Plenty of men here have been where you are and this community is here for you. Best, Richard (Team Member) Hi Richard, thank you. Yes i have read some of the comments here. I was amazed at how many men are going through this PC disease. I will for sure come back here and be part of this community.
I had Urologist appt today to review PSMA results. She said she highly recommends to have the prostate remove and then some type of radiation as there are signs that it spread to the seminal vesicle and also the wall of the rectum.
I have appt with surgeon on Thursday July 3 for more info and possibly schedule the procedure at Moffitt Cancer Center in Tampa, FL.
i will continue to log in here and update as much as possible.
Thanks again
RogerAfter my visit at Moffitt im going to for another opinion. The Dr suggested i had no other option but to remove the prostate along with the seminal vesicles and lymph nodes, even though they have no signs of cancer cells. He also said that the Psma shows signs of something going on the outside wall of the rectum. Possibly will need some type of radiation later on. I'm going to another opinion on July 30 with Dr Patel in Orlando. i want to make consult with him and depending on his diagnosis , will move forward with surgery.
God Bless you all!
RogerHi Roger (
). It is good that you are seeking a second opinion, if for no other reason than to explore options and be confident in your eventual choice. Did the doctor explain why you should have a prostatectomy, even though they believe the cancer has escaped the prostate? I ask because, as noted in this article from Mt. Sinai, "Radical prostatectomy is most often done when cancer has not spread beyond the prostate gland:" https://www.mountsinai.org/health-library/surgery/radical-prostatectomy. Of course, there may be reasons they think it would be useful in your case, but it is a question that deserves an answer. There are numerous treatments for metastatic prostate cancer if that is what you are facing (see here for example: https://prostatecancer.net/treatment/advanced-prostate-cancer). Please feel free to let us know how the upcoming visit goes and to ask questions. Wishing you the best. Richard (Team Member)
Thanks Richard, I had my 2nd opinion on July 30, 2025. All went as expected, no surprises.
He put me on relugolix (Orgovyx®) as to stop the tumor growth as is large and also said reduce the size of it before surgery. They are going to remove the seminal vesicles, lymph nodes as well. He informed me that its best to get them out too. He clearly explained to me that I might need radiation afterwards to get rid of any cells that might be on the outside of the rectum wall. So now we are doing the necessary paperwork to move forward with the RALP hopefully in September.
I pray for minimal side effects from the ADT,
