Enzalutamide
Suggestion for side effects. Experiences side effects.
Everyone reacts differently so I’ve read. I was on xtandi Enzalutamide) for 3 yrs , took a five month break and just started taking it again 3 weeks ago. My med onc says Xtandi & Lupron work together so that’s what I’m dealing with. My side effects are consistently hot flashes, brain fog, loss of muscle, fatigue, weight gain and osteoporosis. The degree of intensity just depends on how your body reacts. I try to exercise and eat a more plant based diet. My cancer Mets are on bone and now lungs. To look at me, I’m a regular chunky guy.
I did lose my hair from the chest to my toes. Kept my beard! 100% of your ability to deal with side effects is attitude and support from those closest to you. Holler if you have any questions. I bought neck fan and embr wrist band to help with hot flashes.
Thank you for this info
I am recovering from spinal surgery to remove cancerous tumors from spine and vertebrae. It’s a tough go. I’ll start chemo in a couple of weeks too kill other tumors bc now lupron and xtandi don’t work. It seems every side effect causes fatigue so I look forward to investigating your suggestion.
I am so glad to hear that these products are helping you. I had to slightly edit your post to remove the link as per our Community Rules about solicitation. Thank you for your understanding. Jill (Team Member)
Hi
I am glad you reached out. While I hope our community members respond with their personal experiences, I am sending you over this article from one of our advocates. I hope it is helpful. Jill, prostatecancer.net team https://prostatecancer.net/living/xtandi-sexual-health For the past 2 years - I have been on Lupron & XTANDI
My prostate cancer did return and i metastasis to my spine and right rib
……….. the bottom line
1. This a VERY EFFECTIVE COMBINATION- my PSA has been undetectable since starting this combination for the past 2 years.
2. The SIDE EFFECTS ARE REAL and YOU MUST MANAGE THEM
the fatigue and muscle loss is substantial- this has effected my balance and arthritis pain because of lack of muscle support
the depression and cloudy recent recall memory is present
Hot flashes after a hot shower is interesting
Body image changes - breast enlargement and penis shrinking with ED
BUT - with these side effects - IS THE PRICE TO PAY IS SO I CAN BE WITH MY GRANDCHILDREN
WE FIGHT THE GOOD FIGHT
I wish you all the best
To fight my fatigue, I started taking Bravenly's energy drink with their supplement called Ignite. It has been a life saver. I drink it first thing in the morning. If I start feeling fatigue come on during the day I I drink another one. I use so much of their drinks and supplements my wife became a Brand Partner. I also have heart disease and have been able to either reduce my dosage or in some cases completely eliminate some of my heart meds. I'm a vet so the VA has assigned me a nutritionists and a cardiologist pharmacologist. Both are on board with the positive effects Bravenly has had on my heart and cancer. I had to delete the link you included as per our Community Rules, but kept your message as is. Jill (Team Member)
I have been on XTANDI and Lupron for two years. I am now 83. Experience hot flashes, fatigue and muscle weakness. Sleep all night. Still enjoy life. PSA now undetectable and has been for 18 months. Scheduled for bone strengthening injections next week. So far, so good. PSA two years ago was 15.
that is great Bob, so glad to hear. Jill (Team Member)
