Ramram
Suggestion for side effects. Experiences side effects.
PCIV68 Member
Everyone reacts differently so I’ve read. I was on xtandi Enzalutamide) for 3 yrs , took a five month break and just started taking it again 3 weeks ago. My med onc says Xtandi & Lupron work together so that’s what I’m dealing with. My side effects are consistently hot flashes, brain fog, loss of muscle, fatigue, weight gain and osteoporosis. The degree of intensity just depends on how your body reacts. I try to exercise and eat a more plant based diet. My cancer Mets are on bone and now lungs. To look at me, I’m a regular chunky guy.
I did lose my hair from the chest to my toes. Kept my beard! 100% of your ability to deal with side effects is attitude and support from those closest to you. Holler if you have any questions. I bought neck fan and embr wrist band to help with hot flashes.
CommunityMember8798984 Member
Sue Franke Moderator & Contributor
JillBrodie Community Admin
Hi
Ed Bulldog Member
For the past 2 years - I have been on Lupron & XTANDI
My prostate cancer did return and i metastasis to my spine and right rib
……….. the bottom line
1. This a VERY EFFECTIVE COMBINATION- my PSA has been undetectable since starting this combination for the past 2 years.
2. The SIDE EFFECTS ARE REAL and YOU MUST MANAGE THEM
the fatigue and muscle loss is substantial- this has effected my balance and arthritis pain because of lack of muscle support
the depression and cloudy recent recall memory is present
Hot flashes after a hot shower is interesting
Body image changes - breast enlargement and penis shrinking with ED
BUT - with these side effects - IS THE PRICE TO PAY IS SO I CAN BE WITH MY GRANDCHILDREN
WE FIGHT THE GOOD FIGHT
I wish you all the best
JillBrodie Community Admin