MyLifeAfterSurgery
Hello everyone
I am 56 years old and had nerve sparing radical prostatectomy 20 months ago.
I had a Gleason score of 7 (3+4) and negative margins on my post-op biopsy.
I have had undetectable PSA since surgery. I consider myself fortunate regarding my cancer,
but unfortunate with the consequences.
The major volume incontinence only slowed down about 3 months ago.
I now have a generally dry first 8 hours of the day, only a few drips.
Then I can go through 2-3 large pads as the evening goes on.
I did 8 weeks of pelvic floor therapy and still do 1/2 hour of exercises every morning.
Of course the more active I am the more chance of leakage.
I have experienced major penis shrinkage and complet ED
I have taken Sildenafil, trying both 50 and 100mg every other day
With very minor results and bad headaches.
I have a meeting with a reconstructive urologist soon and am considering
Surgery for both issues. I have seen so many varied reports on this forum and others
Regarding the “sling” and AUS.
Has anyone here used them in combination with a penile implant?
I am hoping not to go the route of having both but wanted see if any one has tried this.
Feeling pretty frustrated because I am almost over the incontinence
And wondering if more surgery is the right thing, since I still want to lead an active life
All advice much appreciated , thanks.
Richard FaustCommunity Admin
Hi
MyLifeAfterSurgeryMember
beebsMember
I realize your post is over a year old, and you may have already made your decision regarding sling or AUS surgery and penile implant. I had both procedures done, in separate surgeries, about a year apart. Both the sling and the implant have worked very well and my only regret was not having it done sooner. The sling was done 3 years post surgery and the implant 4 years post surgery. If anyone has questions regarding either procedure, I would be happy to answer them.
beebsMember
I was hoping the sling surgery might also help with ED, but that was not the case. I tried the typical stuff, pills, etc., but with poor results. After further consulting with a urology specialist I decided to have the implant at age 68. To answer your questions:
1- My doctor likes to keep his men in the hospital one night following surgery for pain control, which he didin my casen. Lots of soreness and swelling the first week, but it really doesn't limit your mobility that much. 10 days post surgery I went to a concert with some friends. I sat and stood a bit gingerly, but managed just fine. I was scheduled to see my doc two weeks post op to go over the inflation technique, but due to swelling, I waited an extra week. You need to be able to feel the bulb and squeeze it to make it work, and this was much better at week 3. Again, that was not affecting my mobility, as I was getting around just fine.
2- Absolutely! They say you can try it at about 6 weeks post surgery, which we did. That was fine, but things got much better after 8 - 12 weeks, as I recall. I had lost some length from the prostatectomy (I don't think that should happen with the implant), but gained some girth. This all took a little getting used to. Also, no ejaculate because of the surgery, although feeling and function is the same.
3- No pain
4- Everyday life is normal. The inflation bulb and release valve are in the scrotum, but don't interfere with anything I do.
5- No infections
6- Depends on who you ask and perhaps how often it is used. I've read anywhere from 7 - 15 years, maybe longer. I try to inflate mine at least once a week, regardless of if I'm having sex. Like most mechanical things, it is best to use them rather than have them sit idle for long periods of time. Having said that, I don't think I'd go through another surgery to have it replaced should it fail. So, hopefully mine will last as long as I need it. I do feel that the combination of the sling and implant brought my life back to close to normal, which got derailed somewhat by the prostatectomy. Hope that helps!
MyLifeAfterSurgeryMember
CommunityMember63df37Member
I just had both devices implanted at the same time on June 24th after over 2 years of complete incontinence and zero erections post prostatectomy. It seems that the nerves just never grew back. The AUS has me completely out of diapers though I do still have to wear a pad because I can push through the cuff by coughing, sneezing, push-pull, ect. The IPP works perfectly (though I did loose another inch - lost an inch in the original surgery). any questions - I'm an open book.
Richard FaustCommunity Admin
Hi
MyLifeAfterSurgeryMember
Thanks for your reply. It has been a challenge getting feedback on this. So I went with the Sling with great success 9 months ago. I am now basically dry. I still wear a thin pad for the occasional drip. Only after a very long physical day do I have to change a pad.
Now considering the implant in January. My urologist is telling me that I am a good candidate for it.
One concern is that I have experienced major shrinkage from the original surgery.
So much so that urinating past the testicles is a challenge at times. I am hoping that the implant might give just a bit more clearance in the non- erect state, and enough length to perform with an erection.
A few questions for you:
1- how long was your recovery after the implant?
(Just for general mobility- not implant inflation)
2-do you still have enough sensation
To have an orgasm during sex?
3-Do you have any pain during sex
With the implant?
Pills did nothing for me and
I tried Injections which achieved an erection but intercourse was painful.
Hoping the implant will be not as bad.
Thanks again for responding
Its quite the journey
CommunityMember63df37Member
1) - Recovery - I had both the AMS 700 and 800 implanted at the same time so my recovery was indeed worse than having just the IPP alone. I stayed in the hospital 1 night before going home. I would say that the recovery was comparable to the original prostatectomy the first week - major swelling - major bruising - iceing regularly helps greatly - when they tell you to roll up a hand towel and place it under your scotum when on your back - do it - and wear compression shorts (something I wasn't told until the 2nd week) - walking is highly recomended - I did have a 10 pound lifting restriction for the first 4 weeks. I also got a medical donut pillow to sit on to keep pressure off of the area.
2) - sensation is completely unchanged - orgasm is totaly normal - just dry
3) - there is no pain - just a bit of "tightness" which I am told will get better in the next few months (I've only been using the device for 7 weeks)(hot baths are recomended to help with tissue expansion)
Bike riding is something that you'll have to discuss with your doctor after implantation - though I know that many guys do ride. In my case I think I'd have to have special pading to ride a bike because my bulb pushes out of the bottom of my scrotum further than I think most do and it's easy for me to rub the skin raw.
Infection - I myself have not had any issues and don't know of any guys who have
I was told to expect the device to last at least 10 years or over 1,000 cycles.
Yes, it has been quite the journey
Richard - I'm happy to report that I'm still at an undetectable PSA over 2 years post prostatectomy - I had a 4+3 ductal adenocarcinoma with perinural invasion
