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Side effects from radiation and ADT

I have finished my 2 years of radiation, Brachytherapy all while having ADT.
The radiation and Brachytherapy went very well and there were no complaints from the radiation.
My problems the Lupron and Bicalutimide that lasted until mid January of this year.
It started with the hot flashes that were a constant. They seemed to never end. Also had radiation for my breasts that grew. The nipples have been sore and tender like they had been bitten. I still have them but just when I think they’re getting better they rear their ugly head. Another side effect from the treatments was incontinence front and back side. Cystoscope became commonplace as we tried to determine what was going on and how we could get past it.
Trying this medication,that one, trying to get it right.
Catheter, pad, brief. The self consciousness and embarrassment was a constant. I felt the guilt of having my wife see me like that as well as other folks in our family and friends. It wasn’t so much the accidents as it was feeling pity from others.
I joined a zoom discussion of gents that I came across in search for advice. We meet online and it has been quite a help dealing with everything. I’m still doing it a couple evenings each week.
Now that my body isn’t taking the ADT medication, I’m hoping that the side effects subside.
It sounds a lot worse than it is.
Scary, yes. My advice, ask the questions from the professionals.
If you’re wondering about something, reach out whether it be email, patient portal, phone calls, groups. We’re not alone in this.
The gents I chat with are funny, serious, in treatment, survivors, newly diagnosed. We’re all there to give you what you need.
Or steer you toward a better mindset.
You’re not alone and you’re your best advocate to getting what you need. Squeaky wheel gets the oil 😎

  1. Hi . Thank you so much for your willingness to share your story and the power of a support group. Our patient leader Jim also wrote about why joining a prostate cancer support group can be a big help in realizing that one is not alone: https://prostatecancer.net/living/support-group. In addition to asking healthcare professionals, for anyone interested this site offers further information with links for finding groups: https://www.pcf.org/patient-resources/patient-navigation/support-groups/. Wishing you the best. Richard (Team Member)

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