Tell us about your symptoms and treatment experience. Take our survey here.

My story

The start of prostate cancer symptoms

In June, 2022, I was notified that my PSA marker was High at 4.8. I ignored it until May, 2023 when it was up to 9.2.

Since my bladder was not emptying, I started self-catheterizing twice daily. This caused me to develop UTIs on a 2 week cycle - 1 week for it to develop and go to the Urgent Care Clinic, 1 week for the meds to work. I'm not sure they every fully eliminated it though, even though each time was a different bacteria causing it.

Prostate cancer diagnosis and treatment

In August, 2023, a biopsy identified 2 cancerous lesions, both with a PRIADS scores of 3 and Gleason scores of 6. While understanding these were low-level scores, I made the decision to have a full prostatectomy as it was the best option for not having to deal with the UTIs from the catheters.

On October 30, 2023, I underwent a Robotic Assisted laparoscopic radical prostatectomy. The doctor was able to spare the bilateral nerves. I underwent 3 weeks of recovery from the surgery with a Foley catheter and have, since then fully recovered from the surgery itself. That said, I have been dealing with a side effect incontinence since the catheter was removed.

The incontinence was mentioned in our discussions prior to the surgery and I expected to have some, but the reality of this has been harder to deal with than I expected. I am ok while sitting or lying down, but every time I stand, gravity takes hold and my bladder empties. It will also empty a little when I have been upright for awhile (as my body creates more urine).

Life after surgery

I am fortunate that I work from home so dealing with this is not impossible but it has been a struggle with having visitors and with holidays when family is around. My Dr. says this may take a few months to resolve or it may not. I have done Kegel exercises and am scheduled to see a physical therapist to help too.

If I had to go through this again, my decisions would not change, I only wish I was better prepared for the incontinence side effect.

I lost my mother and father to Cancer many years ago (Lymphoma and Brain) so having to deal with it is very frightening, but I feel I am handling this well. We'll see if/when the next shoe falls!

Thanks for giving me the opportunity to share my story.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The ProstateCancer.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.

Community Poll

Do you have ways of managing your mindset for big decisions?