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Recovery After Treatment

  • By ninaw Keymaster

    Share your tips, tricks, questions and progress about recovery after treatment for prostate cancer. Have you tried Kegels? Diet changes? Other exercise? Let us know below!

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  • By Sam Collins

    Hello all, I have a question! Has anyone that has had stage4 advanced prostate cancer for many years. 13 1/2 years for me, had their PSA go to 0 for a year? Mine went to my lymph nodes and then to my bones ( base of my skull ). After radiation to my skull and a follow-up with true beam radiation. It started dropping and went to 0 and. Has stayed there for a year. I also had a clean bonescan. My doctor said that he has never seen that before. At the clinic they are calling it a miracle. I of course know that it is possible that some cancer cells may come back. Will continue to watch it for the rest of my life. Thanks Sam

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    • By ninaw Keymaster

      Hi Sam! I can’t speak to your question of whether this has happened to anyone else. But what an incredible thing to hear! How are you handling the news? I think I would be in disbelief. I’m glad you’re keeping in mind that things could change, but also hopefully celebrating as well. – Nina, ProstateCancer.net Team

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    • By Sam Collins

      I’m use to the roller coaster ride by now so I just take it a day at a time. We have stopped all treatment and my testosterone is slowly coming back. It’s already helping me feel better. If it comes back of course we will jump back into the fight. I don’t know if anyone has ever gone to 0 after this long into the fight. My oncologist has never seen it before. I just wanted to see if anyone out there has seen it. I have seen to many of my friends die from this terrible disease. One of my best friends just died from it. Thanks for putting it out there.

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    • By ninaw Keymaster

      I’ve heard about folks getting back to undetectable PSAs after a couple of years, but I don’t think we’ve heard of it happening after so long. I’ll be thinking of your friend and his family, and you as well as someone who will be grieving his loss. This article is from our sister site, SkinCancer.net, but it’s from the perspective of a man who’s lost many friends to melanoma and other cancers: https://skincancer.net/life-with-skin-cancer/loss/. – Nina, ProstateCancer.net Team

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    • By Chuckcole

      Hi Sam Collins, I was at stage 4 prostate cancer Gleason scale 10 for 3 and 1/2 years. The absolute lowest they got my PSA down to was 3 for short time. I’ve also had a number of radiation treatments too. I was on a regular chemo drug for a while then they took me off of it it put me on hormone pills. That lasted about 7 months the PSA started to rise again. my doctor tells me my cancer is very aggressive. So I’ve been through five different chemotherapies and now I’m on my 6th. And out of 11 doses my PSA went from 1200 down too 162. and I’m still kicking around. I don’t let it beat me up anymore I laugh along with everybody have a great time at life the best thing you could do is just have a good attitude. Attitude is always the best. And as I said to other people with prostate cancer never give up, never give in. We will beat this together. Stay strong Sam.
      Chuck moderator

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