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Diagnosed in October, PSA 97, Gleason 4+3/7

I just found this site this week so I guess I'm already 6 months behind. 😀

I'm 66, healthy and active and in October I learned my PSA rocketed up from 3 to 97; from there the journey has been interesting to say the least.
- Three days after the high PSA reading I had a biopsy showing me at 4+3 / 7 on the Gleason scale.
- Early-November I had a PET scan which showed cancer in some abdominal lymph nodes and in my collar bone.
- Mid-November I met with my urologist who basically informed me I had less than 5 years to live.
- Late-November I met with my medical oncologist who looked askance at the PET scan and suggested what was showing was a ghost due to an old injury; his reasoning was the scan was showing cancer in the shoulder joint. Oddly enough, I did dislocate that shoulder in the middle of a triathlon in 1990 and it has been intermittently painful ever since.
- Mid-December I had a high-contrast CT Scan and a Bone scan which did not show any cancer in my bones.
- Mid-January I had an orchiectomy performed in lieu of hormone treatment.
- Early-March I met with my medical oncologist who informed me my PSA had dropped to 10. He recommended additional therapies and we settled on Erleada.
- Mid-March I met with my radiation oncologist who wants me to undergo another round of scans this July to see the efficacy of the surgery and the Erleada, and to determine what he can do for me regarding radiation therapy.
- Late-March my Erleada arrived; I've been taking it for just over two weeks now with zero side effects.

At this point, the only real side effect I've experienced throughout this entire ordeal is what the doctors call "hot flashes", but which I call "hot hours". So here I am, still working full time and enjoying what I do for a living, I'm in the process of buying a new house, and yet I have no idea whether I'll live five more years or thirty-five more years. Given I'm a glass is half-full kind of guy, and given I have had exactly zero symptoms from the cancer, I'm more inclined to think I have several decades left on this planet.

  1. Hi . Considering that there seems to be some question concerning the nature of any metastasis for your cancer, has anyone mentioned a PSMA test? I ask because the PSMA is the gold standard at locating metastatic prostate cancer. This article from our editorial team goes into great detail: https://prostatecancer.net/treatment/psma-targeted-pet-imaging. I also want to note that it mentions that it is now also possible to use the PSMA to target specific radioligands more directly at the cancer.

    I also want to note in regards to any mention of a life span that we have several contributors and community members who were diagnosed with stage 4 prostate cancer quite a few years ago and are still going strong. Here is the bio of our patient leader Tony as an example: https://prostatecancer.net/community-advocates/tony-collier. Treatments have come a long way in a short time and are only getting better. It is great to see your positive attitude and, given what is known and unknown about your condition, it will serve you well along with continuing to search for answers and treatment options. Best, Richard (ProstateCancer.net Team)

    1. Thanks , I read the PSMA page and do not think that is something which has been discussed at this point; I'll reach out to my medical oncologist on Monday and run it past him.

      I will of course keep you posted.

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