SamuelTaylor
Here in the prostate cancer community, there are many thoughts, feelings, and experiences about PSA testing. This is a space to share about all things PSA testing.
Dennis E. Golden Member
Additionally I suggest to always keep a written history of your psa tests. If you see an increase in numbers over a few tests it may be a good idea to connect with a urologist vs staying with a GP. I did that a few months ago and candidly that early warning paid off for me. Dennis (ProstateCancer.net TEAM)
cwcathe Member
CommunityMember3745aa Member
Three days later, Tuesday, I was in the same place for an allergy shot, and the doctor, looking both glum and embarrassed, called me into his office after the shot. He invited me to sit down, and without another word slid a paper across his desk to me. I read it, realizing it was my PSA report, but could not find the number, which I expected would be between 1 and 10. I did see the figure 113.6, but considered it some kind of medical code. Suddenly I realized that WAS my PSA result! I then noticed the pathologist's scrawled note: "Get appt ASAP." I was stunned, shocked. My first thought was "It can't be as bad as it looks because I'm still breathing."
The biopsy confirmed aggressive prostate cancer, GS 4+3=7 (GG3), all cores positive, most 100% cancer, with doubling time evidence from intermittent ADT vacations showing a PSADT from PSA 5 to PSA 10 of three to four months. The stage was 3. An attempt at a cure with radiation in 2013 plus my fourth round of ADT was successful, as my PSA eventually fell to less than 0.006 and has stayed there for years. With that rapid doubling time and my baseline PSA over 100, I was at the hidden edge of a cliff but blind to it. I strongly support PSA testing!
bvjarvis1 Member
PSA tests aren’t wrong/misleading (unless there’s a lab error). Many people have simply misunderstood its purpose.
For initial diagnosis, a PSA test isn’t a “cancer test.” The PSA number itself is similar to a “check engine” light in your car; it indicates that something may be wrong, and further checks should be made “under the hood.” Might be as simple as a UTI; might be BPH; might be more serious. (Or the man might have engaged in an activity causing a temporary rise in PSA. Many things can affect PSA, which is why it’s important to be sure that your PSA is as accurate as possible.)
Just need to have further checks. No need to panic, or rush to a quick treatment decision, or get overly concerned. With early and annual screening, if there is an elevated PSA, other tests and numbers should also play a role in deciding on additional treatment.
bvjarvis1 Member
I had my 1st PSA test at 45y (in 2000) — because I asked for it. That’s the way it often is with PSA testing; a guy simply has to ask for it.
CommunityMember3745aa Member
I just posted about my own first PSA test result of 113.6, and it is virtually certain that I am now cured almost 26 years later. What follow-up have you had and how are you doing?
flutepilot Member
I had an 8.6 the prior year. At my wellness exam, the doctor told me "we do not do PSA at your age". I finally took myself to urology. PSA 16.3 and 21 of 23 biopsies bad. Radiation; chemical castration. Alive but no longer a 'man'.
Chippydoo Member
Davi Member
deadstick Member
If it was up to me, I'd have PSA testing for men start at 40.