The biggest mistake was not acting quickly enough. My PSA wandered between 4-5 for two years because my urologist did not “feel” I had cancer and so treated me for a swollen prostate (raparlo) . When I said I felt better, he drew blood for a PSA ,confident it would go down, instead it came back at 7.5. So now we were in panic mode and I had an MRI within 2 weeks, but my urologist didn’t look at the results for a month(vacation). The mri showed a large tumor on the left side . It took another six weeks to get a biopsy which showed cancer Gleason 8(5+3), and another 6 weeks to actually get to surgery. 3 months , very important months as it turned out, wasted. When we finally did the surgery he only got 98 % of it. 6 months later I’m having whole pelvic radiation, but no scans to guide the treatment . After 26 treatments of 6000 units, I still had the cancer, and it was growing with a doubling rate of 139 days. It’s now just about 9 years later and I’ve had a bunch of scans, including 2 PSMA scans, targeted radiation, immunotherapy and I’m now on eligard/xtandi with a stable PSA of 10. I also have a late stage cancer oncologist with a sense of urgency.
Prostate cancer may grow slowly for some men, but not for me. And the one size fits all mentally early on in my journey wasted the opportunity to cure this at an early stage. Too much “ we do it this way” , and little or no sense of urgency when it could have made a difference .