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Hi DEandFLguy, it sounds like you have a lot in common with Vikster, who posted this similar Q&A: https://prostatecancer.net/q-and-a/urinary-sphincter/. I hope you hear from some other guys who’ve been through it. Bear in mind we’re a small community right now! Looking forward to hearing how you come to your decision. – Nina, ProstateCancer.net Team
Thanks for updating, Bob. Perhaps you could submit a story on it if you have time. Either way, looking forward to hearing how it goes. – Nina, ProstateCancer.net Team
Yep, we’ve heard a lot about troubles with “the Hots.” Sharing this article on them, although I’m sure you could write one yourself! https://prostatecancer.net/living-coping/hot-flashes/. I hope they improve over time. – Nina, ProstateCancer.net Team
Hi Vikster! I’m hoping someone from the community will be able to share their experience, but in the meantime I wanted to share the article we have on incontinence: https://prostatecancer.net/living-coping/incontinence/ and our Q&A on leaking: https://prostatecancer.net/q-and-a/leaking-stop-improve/. Thanks for asking this question, I’m sure…
My Infusion Biopsy had to be rescheduled due to an infection. New date 7 June 2018. I will post the results about 10 days after the biopsy.
I would like to learn more from the group about implants for controlling incontinence as I am still dealing with moderate to high levels 14 months after surgery. My urologist is encouraging me to go that route.
Trying to be positive after having surgery, Lupron for 8 months and radiation with incontinence.
The stress of the diagnosis is overwhelming. Active surveillance was not working for me. Know you have cancer affects almost everything you do. I experienced the irritable. I was crabby about nothing. I didn’t sleep. I didn’t want help to plan or commit to any trips my wife was working on. My cancer consumed my life. I am two and a half weeks out…
Hi @bobharrison, I want to thank you for providing your perspective. You clearly have studied your situation quite carefully. It’s extremely helpful to hear your thought process and the technologies you harnessed to make your decisions. Let us know how things progress. Hopefully no action needed anytime soon! – Nina, ProstateCancer.net Team
Hi @mitchden, I want to thank you for sharing your experience. It’s really helpful to collect these stories so that others can find those with similar diagnoses and treatment choices! I wonder if you could help us answer this Q&A on leaking after treatment? https://prostatecancer.net/q-and-a/leaking-stop-improve/. Hope you’re well! – Nina,…
February’s Lupron shot is probably still active as testosterone level = 27 (min. is usually 250?) and “the Hots” still happen…
I was sudated when I had my biopsy. I had some friends who said it was terrible. The thing that everyone should know is you can be sudated. You might have to wait a week to get an appointment in a surgery center. But no pain at all.
How do I find a support group in my area?