FeaturedNIH march-in case for XtandiThe National Institutes of Health (HHS) has been asked by four prostate cancer patients to end the monopoly on enzalutamide (Xtandi), over its high price in the USA (3 to...Reactions0reactionsComments2 replies
FeaturedPsma pet15 years after Radical Prostatectomy my PSA has risen to .6 and my doctor is recommending radiation to my pelvic area. My fear is after 15 Years it may have...Reactions0reactionsComments5 replies
sense of urgency when laying on back2 years since surgery. For past year I've been getting this sensation immediate need to urinate when I lay on my back. Feeling goes immediately away if I get up...Reactions0reactionsComments1 repliesSide Effects
Featured56 years old new PC diagnosis I am healthy 56 recently diagnosed with Gleason 6 T1 PC. 4 out of 12 cores 10% -20% malignancy. Just starting this journey of decision making. I feel like waiting...Reactions0reactionsComments3 replies
FeaturedThe lie my surgeon told meReading all these posts about men being able to have sex after surgery is very depressing for those of us who the surgery butchered sexually despite being told we would...Reactions0reactionsComments14 repliesIntimacy & RelationshipsAwarenessHealthcare Team
Will You Take Our 2022 Prostate Cancer In America Survey? An estimated one in nine men will be diagnosed with prostate cancer in their lifetime (one in six for African-American men), with the likelihood increasing with age. To better understand...Reactions0reactionsComments0 repliesAwareness
FeaturedNewly diagnosed, and worriedBiopsy results: Gleason 7 (3+4), group 2. Want to be more aggressive than "active surveillance", so am looking at surgery or radiation. I've read that radiation precludes later surgery if...Reactions0reactionsComments7 replies
What was your experience with salvage radiation?I have to have 39 sessions with salvage radiation for recurrent prostate cancer. I was interested in hearing about peoples' experience, what was it like day-to-day while getting the radiation...Reactions0reactionsComments6 repliesMental HealthSide EffectsTreatment
FeaturedHow to complete a successful tier exemption appealI am trying to appeal a recent tier exemption request. Humana. Drug is Xtandi and will cost a whopping $12,000+ a month. Humana will pay about $9,000 without the exemption...Reactions0reactionsComments9 replies
FeaturedNeed some advice Hello everyone. I am looking for some advice. I am 55. No history of prostate cancer in my family. My story began about 5 years ago when I had my...Reactions0reactionsComments8 replies