Join the Conversation: How to Deal With "Scanxiety" and Waiting for Test Results With Prostate Cancer

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Having to undergo tests or screenings for prostate cancer can be nerve-wracking. You may be nervous about an upcoming prostate-specific antigen (PSA) test to see if your levels have risen. You may be preparing to undergo a biopsy to determine if prostate cancer is present. Or you may be receiving an MRI or CT scan.

Any of these tests can cause anxiety – or what some refer to as "scanxiety" – before, during, and after. Below are some interesting conversations that have taken place on scanxiety and awaiting test results on ProstateCancer.net. Take a look around to see what others have shared and join the conversation.

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megnani Member
Dealing with "scanxiety," the anxiety that comes from waiting for test results, especially in the context of prostate cancer, can be particularly challenging. Here are some strategies to help manage this anxiety: ### Understand the Process - **Educate Yourself**: Understanding the testing process and what the results might mean can demystify the experience and reduce fear of the unknown. - **Ask Questions**: Speak with your healthcare provider about what to expect. Knowing the timeline and next steps can help you feel more in control. ### Practical Strategies - **Stay Busy**: Engage in activities that keep your mind occupied. Work, hobbies, exercise, and social activities can distract you from worrying. - **Limit Research**: While it's good to be informed, excessive online research can increase anxiety. Stick to reputable sources and avoid information overload. - **Create a Routine**: Establishing a daily routine can provide a sense of normalcy and stability during uncertain times. ### Emotional Support - **Talk About It**: Share your feelings with friends, family, or a support group. Talking about your anxiety can provide relief and support. - **Professional Help**: Consider speaking with a counselor or therapist who specializes in dealing with chronic illness and medical anxiety. - **Support Groups**: Joining a support group, either in-person or online, can connect you with others who are going through similar experiences. ### Mindfulness and Relaxation Techniques - **Meditation and Mindfulness**: Practices such as meditation, deep breathing exercises, and mindfulness can help calm your mind and reduce anxiety. - **Relaxation Techniques**: Techniques like progressive muscle relaxation, guided imagery, or listening to calming music can be very soothing. - **Yoga and Tai Chi**: These practices combine physical movement with mindfulness and can be very effective in reducing anxiety and improving overall well-being. ### Physical Health - **Exercise**: Regular physical activity can reduce stress and improve your mood. Even light exercise like walking can be beneficial. - **Healthy Diet**: Eating well can improve your physical well-being and contribute to a better mental state. - **Sleep**: Ensure you are getting enough rest. Good sleep hygiene practices can help improve the quality of your sleep. ### Preparation for Results - **Prepare for Both Outcomes**: Mentally preparing yourself for different potential results can make the news less overwhelming. - **Write Down Questions**: Prepare a list of questions you want to ask your doctor when you receive your results. This can help you stay focused and ensure you get all the information you need. ### MBC Caregiving Partners Virtual Zoom Meetups Given that you participate in the MBC Caregiving Partners Virtual Zoom Meetups every other Tuesday at 4 pm ET, you can use these sessions as a resource. Share your experiences and anxieties with the group, and seek advice or just a listening ear from others who may have faced similar situations. Managing "scanxiety" involves a combination of staying informed, seeking support, maintaining healthy routines, and practicing relaxation techniques. Remember, it's important to reach out for help and use available resources to support your mental and emotional health during this time.
Jim Early Moderator & Contributor
So many good suggestions. I have been dealing with scanxiety for almost 28 years. It actually does get better with time. I think I've asked most of the questions I could ever think of and considered what every outcome of every test could be and what the outcome would mean. After a while the temperature lowers and I've been able to adopt a "Whatever it is, I can handle it" attitude. It is important not to fall into a "head in the sand" mentality, however. Routine testing and any required followup is the price we pay for living with rather than dying from prostate cancer. Like Dennis Golden and others who post here frequently, I'v been through surgery, radiation of metastases, ADT hormonal therapy and all the blood tests and scans needed. But what makes me more and more able to reduce my scanxiety is my knowledge of the tremendous medical resources still available on my treatment path. In addition I have reached out and have friends and group members to whom I can openly share my anxieties. Just realize...even though the road is long, it is better paved now than ever!!
Jim Early Moderator & Contributor
Just thought I'd update my post. Again it is time for increased anxiety. I shared my situation with my support group. As usual that helped. But next week I will get a recheck on my PSA which is now approximately 0.6 with a doubling time of 6-8 months. Even though I had a clean PSMA Pet Scan five months ago, my PSA has doubled since then. So, if the PSA has risen significantly it is probably time for a restart on an ADT medication (Orgovyxx in the past). If the PSA has risen a lot then maybe another PSMA Pet Scan soon? In other words, despite a lot of support the anxiety slowly rises. After 28 years total and 6-7 since my recurrence and almost 3 years since my single bone met was zapped, there is still some Scanxiety. Despite all I've learned and all my great support the anxiety never completely goes away. So again I count my blessings and remember to be grateful for all these extra years and ask humbly for a few more!