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Retraction issues after prostate surgery and possible implant for ED. Also slowing climbing psa.

Hi everyone I was diagnosed with prostate cancer at 60, totally shocked as I felt fine and very active person, someone who never gets sick. Just went for some random blood tests and dr decided to add the PSA test. Luckily he did as it came back at 11.25. Had a biopsy, had a prostate exam and he felt a lump. Several weeks later biopsy confirmed cancer Gleason score of 7, 3/4. Decided on radical prostatectomy. After wards my psa was .01. 3 months later still at .01, three months later .02, and my last reading three months later was .05. I know that is still very low but it’s trending the wrong way..my dr says we will just keep regular monitoring for now and see how it goes. Anyone else experience this? I really don’t want to do radiation as that as that’s why I had the prostate surgery to begin with.

On another subject I had incontinence for about 2 weeks after the surgery but control came back quickly and is not an issue. But I have ongoing issues with ED. It’s 19 months since my surgery and I have been using the pump, taking Cialis and finally tried the Trimix (needle) nothing is working very well. I get a somewhat rigid penis but not enough to be usable. Also I lost some length and I have a problem with I think it’s called retraction where my penis will pull back and it’s very uncomfortable and somewhat almost painful at times. I am forever shoving my hand down my pants or in my pocket have to pull it out and readjust…it’s truly driving me crazy. I have read a bit about an implant…has anyone else suffered from this? Appreciate any feedback. Thanks

  1. Hi . It is certainly understandable that the rising PSA would be concerning. It is also understandable that your doctor is monitoring at this point. The PSMA PET scan is the gold standard in detecting recurrent prostate cancer (see: https://prostatecancer.net/clinical/psma-imaging-scan) and it really only starts to become reliable at PSA levels of 0.2 and up.
    Concerning the implants for ED, while it may not be for everyone, I can tell you that I have seen a number of men here write positively of their experience. Here is a forum discussion on the topic: https://prostatecancer.net/forums/penile-implants. Hopefully others will chime in with their experiences. Best, Richard (Team Member)

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