Community Advocates

In order to stay up to date on the latest treatments, drug discovery, clinical studies, and how to cope with prostate cancer every day, ProstateCancer.net brings you frequent articles, blogs, opinions, and advice from leading patient advocates and professional medical experts.

Al DiPierno

Al DiPierno was born in Brooklyn, NY on May 17th, 1952. He attended school in Brooklyn and upon graduation from high school, wanted to get out of the Big City, so he attended the University of Dayton in Ohio. It was there, while getting his engineering degree, that he meet his wife and soul mate Barbara. They have been married for 43 years. They have two children and 3 wonderful grandchildren. Read more.

Alison Petok, MSW, LCSW, MPH

Alison Petok is an oncology social worker; she received her Master in Social Work and Master in Public Health from the University of Pennsylvania. She has worked in oncology research and currently serves as a clinical social worker in the Department of Medical Oncology at Thomas Jefferson University. Read more.

Diane Talbert

Diane Talbert is a blogger, patient advocate, and speaker for psoriasis, psoriatic arthritis and a caregiver for her father who had prostate cancer. She presently writes for several organizations. She has been feature in Arthritis Today, Everyday Health, Arthritis Foundation, Black Doctor. Org, New York Times, and Health Central. Read more.

Freddie Muse Jr.

Freddie Muse Jr. is a 10 year prostate cancer survivor diagnosed January 2007, and founder of The Men’s Cancer Network, Inc. located in greater Los Angeles, CA and founded in 2008. The organization provides professional education from qualified licensed doctors. Included in the education are experts from the community that facilitate to the local community churches, health fairs, senior centers, community libraries and cancer support group meetings that all contribute to “Saving Our Men”. Read more.

Greg Reynolds

Greg Reynolds is a retired electrician of 40 years. He now teaches electronics at his local junior college and does volunteer work for his church and local hospital. He’s 60 years old, lives in a small community in down state Illinois. He has a 29 year old recently married daughter. Greg’s been a PC fighter since 2013. He has lead a very athletic life, including competing as a natural bodybuilder in his 40’s. Read more.

Len Smith

Len Smith is a very “high grade” (Gleason 9) prostate cancer survivor diagnosed by biopsy on 5/3/2013, 5 weeks before his 69th birthday, and had a radical prostatectomy (removal of this prostate) on 6/5/2013. On 6/9/15 he received the bad news that he had a positive PSA which could only come from PC that had metastasized outside the prostate bed before the surgery. And for 39 weekdays in the summer of 2015, he underwent radiation of the prostate bed at the University of Pennsylvania. Happily, Len’s PSA in October 2017, was undetectable, i.e., he’s most likely free of the PC, but like all PC survivors, he will have a PSA semiannually for the rest of his life as the PC can come back many years later. Read more.

Nick Myers, PhD

Nick Myers, or “Dr. Nick” as people affectionately call him, is currently a Medical Care Coordinator (MCM). He received his B.A. in Psychology from Old Dominion University, his M.A. in Human Sexuality & Health Studies from New York University and his Ph.D. from Widener University in Human Sexuality Education. He has written sexual health education materials and articles, created informational videos and even co-hosted an online radio show on sexual health in relationships. Read more.

Simon Lord

In 2010, aged 50, Simon Lord was diagnosed with T2C prostate cancer. T2C means that it was in both sides of his prostate, but only in his prostate. He was lucky in several ways. Firstly because his cancer was found before it had spread to other parts of his body, secondly because he was otherwise in good physical health and finally and probably most importantly he had a great supportive family and network of friends. Read more.

Todd Seals

Todd Seals is an 11+ year, stage IV, prostate cancer warrior. Diagnosed June of 2006 stage IV with widespread metastasis and initial PSA of over 3200.

Life is about quality, not quantity. We all die yet many never live. Todd speaks from experience. Cancer may take his life but it has taught him to live. It put everything into perspective and gave him a second chance. He writes about living with cancer focusing not on disease but on life. Cancer will always be a part of the story but never the focus. Read more.

Tom Schultz

Tom was diagnosed with Stage One prostate cancer in August 2016 and his urologist at the time encouraged him to get a Prostatectomy.

At the urging of his children, he got a second opinion and met with an oncologist. His oncologist recommended active surveillance due to his PSA and Gleason score at the time and discussed future treatment with CyberKnife radiation.

It is now 16 months later and Tom is still Stage One and is continuing to work with his healthcare team to monitor for any signs of progression. Read more.

Will Jones

Despite health challenges like coronary artery disease, diagnosed in 2010, and prostate cancer, diagnosed in 2017, Will enjoys an active outdoor lifestyle that includes hiking, backpacking, rock climbing and playing golf. He is also active as a volunteer in his community and a regular contributor to “Journal Plus: The Magazine of the Central Coast.” Read more.

With the exception of medical doctors, contributors and moderators at ProstateCancer.net are compensated for their contributions to the ProstateCancer.net community. If you are interested in joining our team, please contact us at contact@prostatecancer.net.