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Community Advocates

In order to stay up to date on the latest treatments, drug discovery, clinical studies, and how to cope with prostate cancer every day, ProstateCancer.net brings you frequent articles, blogs, opinions, and advice from leading patient advocates and professional medical experts.

Current advocates

Earl Bowen Jr

Dr. Bowen’s research background focus addresses the psychosocial implications of prostate cancer among African American men. In January 2015, his work on prostate cancer survivorship among this population was published in The Journal of Research and Development and subsequently in the International Journal of Neurorehabilitation. Read more

Dan Cole

Hi everybody, my name is Dan Cole. I am a 57 year old factory worker from Michigan. I’ve been married for 31 years and have two adult sons. I also have a 5 year old black Lab named Zoey, whom you will hear all about. Read more

Erin Glace

Erin Glace, MSPT, PRPC, BCB-PMD, is the clinical director of the Physical Therapy and Urodynamics departments at Urology of Virginia. She is a graduate of the University of Florida with her bachelor’s degree in Physical Therapy and a graduate of Old Dominion University with an advanced master’s degree in Physical Therapy. Her sole focus of treatment is pelvic floor dysfunction and she has worked with the doctors at Urology of Virginia since 2000. Read more

Dr. Christina Hegarty, PT, DPT

Christina is a doctor of physical therapy currently licensed and practicing in Mississippi. Christina is a native of the Mississippi Gulf Coast, where she was born and raised. She obtained her bachelor degree in exercise science from the University of Mississippi in 2011 and her doctorate degree in physical therapy from the University of Mississippi Medical Center in 2014. Read more.

Will Jones

Despite health challenges like coronary artery disease, diagnosed in 2010, and prostate cancer, diagnosed in 2017, Will enjoys an active outdoor lifestyle that includes hiking, backpacking, rock climbing and playing golf. He is also active as a volunteer in his community and a regular contributor to “Journal Plus: The Magazine of the Central Coast.” Read more

Mariah Zebrowski Leach

Mariah is a writer and patient advocate who lives in Colorado with her husband and two young sons. Diagnosed with rheumatoid arthritis in the middle of law school, Mariah now uses her law degree to help people with chronic health issues. Read more

Simon Lord

In 2010, aged 50, Simon Lord was diagnosed with T2C prostate cancer. T2C means that it was in both sides of his prostate, but only in his prostate. He was lucky in several ways. Firstly because his cancer was found before it had spread to other parts of his body, secondly because he was otherwise in good physical health and finally and probably most importantly he had a great supportive family and network of friends. Read more

Angela Lundberg

Angela Lundberg is a writer, photographer, and health advocate and was diagnosed with rheumatoid arthritis at age 18. Living with the disease for over a decade has made her passionate about patient advocacy, and determined to not let RA stop her from doing what she loves in life. Her father has been fighting prostate cancer since March 2013. Read more

Freddie Muse Jr.

Freddie Muse Jr. is a 10 year prostate cancer survivor diagnosed January 2007, and founder of The Men’s Cancer Network, Inc. located in greater Los Angeles, CA and founded in 2008. The organization provides professional education from qualified licensed doctors. Included in the education are experts from the community that facilitate to the local community churches, health fairs, senior centers, community libraries and cancer support group meetings that all contribute to “Saving Our Men”. Read more

Nick Myers, PhD

Nick Myers, or “Dr. Nick” as people affectionately call him, is currently a Medical Care Coordinator (MCM). He received his B.A. in Psychology from Old Dominion University, his M.A. in Human Sexuality & Health Studies from New York University and his Ph.D. from Widener University in Human Sexuality Education. He has written sexual health education materials and articles, created informational videos and even co-hosted an online radio show on sexual health in relationships. Read more

Chris Pedlar

Chris lives and works in North Devon (United Kingdom) and has a history of Prostate Cancer in his family. His Grandfather died from Prostate Cancer and his father had a radical prostatectomy in the late 90’s and is still going strong providing a great source of inspiration. Read more

Alison Petok, MSW, LCSW, MPH

Alison Petok is an oncology social worker; she received her Master in Social Work and Master in Public Health from the University of Pennsylvania. She has worked in oncology research and currently serves as a clinical social worker in the Department of Medical Oncology at Thomas Jefferson University. Read more

Jim Preen

I’m Jim Preen, a Londoner, who was diagnosed with prostate cancer in the Fall of 2017. I call my cancer The Unwelcome Guest. In my writing I try to tackle this intruder with a combination of honesty and humour, but inevitably darker topics are addressed; some of which might conceivably put you off your waffles and coffee. Read more

Todd Seals

Todd Seals is an 11+ year, stage IV, prostate cancer warrior. Diagnosed June of 2006 stage IV with widespread metastasis and initial PSA of over 3200. Life is about quality, not quantity. We all die yet many never live. Todd speaks from experience. Cancer may take his life but it has taught him to live. It put everything into perspective and gave him a second chance. He writes about living with cancer focusing not on disease but on life. Cancer will always be a part of the story but never the focus. Read more

TK Sellman, RPSGT CCSH

TK Sellman, RPSGT CCSH is a career journalist (Columbia Chicago, ’90). She was diagnosed with idiopathic hypersomnia in 2010, which inspired her to go back to school to become a sleep technologist in 2012 and a professional sleep educator in 2014. Read more.

Tom Sheppard

Tom Sheppard at age 76 considers himself one of the lucky ones. He says he is in pretty good shape for the shape he is in. After 2 radiation series and dally medication his PSA has been 0.00 for 14 months. However research and the oncologist say chances are it is still lurking undetected. Read more

Len Smith

Len Smith is a very “high grade” (Gleason 9) prostate cancer survivor diagnosed by biopsy on 5/3/2013, 5 weeks before his 69th birthday. Happily, Len’s PSA in October 2017, was undetectable, i.e., he’s most likely free of the PC, but like all PC survivors, he will have a PSA semiannually for the rest of his life as the PC can come back many years later. Read more

Doug Sparling

Doug has found himself drawn to advocacy, which has become his life’s passion. In October 2017 he was diagnosed with stage 4 metastatic prostate cancer. Despite this life-changing event, Doug is still the same pleasant and hospitable fellow he always was, though now he lives with incurable cancer. Read more

Diane Talbert

Diane Talbert is a blogger, patient advocate, and speaker for psoriasis, psoriatic arthritis and a caregiver for her father who had prostate cancer. She presently writes for several organizations. She has been feature in Arthritis Today, Everyday Health, Arthritis Foundation, Black Doctor. Org, New York Times, and Health Central. Read more

Bob Tierno

In 2018 I was diagnosed with T2C prostate cancer discovered early and now have added survivor to my resume following successful DaVinci Robotic Surgery and PSA test results of <0.001 undetectable. There are/were many decisions to be made on this major detour on the way towards my 70th birthday in June, 2019. Read more

John Teisberg

John Teisberg is a prostate cancer survivor of 10 years. He is an active moderator for a lively online support group for men living with cancer. He has organized and lead support groups for men for over 30 years. Read more

Former advocates

Chuck Cole

Charles Cole is 64 years old. I live in Central Florida just west of Disney with my wife of 39 years and I have 2 daughters 35 and 29. I am recently retired from Universal Studios Orlando Florida as a Show Control special effects. I joined the U.S. Navy 1983-1987. Read more

Greg Reynolds

Greg Reynolds is a retired electrician of 40 years. He now teaches electronics at his local junior college and does volunteer work for his church and local hospital. He’s 60 years old, lives in a small community in down state Illinois. He has a 29 year old recently married daughter. Greg’s been a PC fighter since 2013. He has lead a very athletic life, including competing as a natural bodybuilder in his 40’s. Read more

Tom Schultz

Tom was diagnosed with Stage One prostate cancer in August 2016 and his urologist at the time encouraged him to get a Prostatectomy. At the urging of his children, he got a second opinion and met with an oncologist. His oncologist recommended active surveillance due to his PSA and Gleason score at the time and discussed future treatment with CyberKnife radiation. It is now 16 months later and Tom is still Stage One and is continuing to work with his healthcare team to monitor for any signs of progression. Read more

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